I feel so sorry for people with this so called invisible disease. I was diagnose in 2012. I had my first surgery in January 2013 and had another in June 2013. I was so miserable and could not eat anything. I lost weight and did not want to go outside, especially in the grocery stores. People that know me would stare at me as if I was a stranger. I felt so uncomfortable and useless. I have had my ups and downs, but lately this year around August I had an episode , when I vomit and have a severe diarrhea that is what I called it. After that, I started losing weight and is still losing. I went to the gastro doctor and she told me that everything looked fine, and I asked her why am I still losing weight. She told me that I was eating healthy, but I need to eat food with calories in it. The same food that has calories in it do not agree with me. I eat grill chicken, soft foods like rice, grits, egg noodles, some veggies that are cooked completely soft, bread, sometimes rice Krispy cereal or cheerios, drink water, cannot tolerate any other drinks like soda, juice, or children's juice. It causes heart burn.
When, I try to explain it to people they be like wow, how do you eat like that. I explain to them that I have to , because I want to live. I feel hopeless at times, but I cannot let this disease get me down completely. It is a struggle everyday. I do not go out to restaurants, because most of them do not serve food that I can tolerate. I never thought that this will happen to me, but it did.
I wish everyone with this disease the best, and hope everything that you wish for will come true.