Hi!

My daughter, Jaanvi Singh, is at BC Children's Hospital with all these conditions mentioned above. She is dependent on breathing support. Doctors here at this hospital are having difficultly coming up with solutions on her feeding and breathing issues. My daughter will complete here 3 months on August 01st. There has been no progress in terms of her health even though she is getting older by the day. Children with Kabuki Syndrome do have feeding issues, however it is rare for these children to have difficulty in breathing. Is there anyway you can help us, guide us, show us the path. I, Sheeru Singh and my wife do not want to see our daughter come home on respiratory support. If there is any other information you'd like to know please do email me. I will provide all the answers. Please find it in your heart to help my daughter Jaanvi.