I am a 31 year old female, diagnosed with Crohn's disease when I was 19.
I've been treated with coticosteroids and endone (to control pain) for years. And recently took myself off the cortisone as it seems wrong to stay on it for so long.
I'm unconvinced that all my problems are due to Crohn's. I'm not even sure I have it.
At present (and intermittently) I feel tired all the time, sleep heaps, have severe muscle pain in my legs, and am often nauseous. They are my major symptoms but I generally feel unwell and weak. I'm small and often am assumed to be anorexic or a druggie but I do eat although at the moment I am throwing up often when I do eat, and I'm not a drug user.
I am at my wit's end as I've seen more doctors than you could imagine, have been in hospital many times, even had blood transfusions not long ago. I need a doctor to take my situation as a challenge, to look at me and my whole story, and not make a snap diagnosis. Sometimes I think being on long term prescription medication has had an effect and that's a big part of my problem.
I don't know exactly why I am so sick, and weak, but would love to do whatever it takes to be healthy again.
Thank you for any help you can give me.
Rikki