I Have Gastroparisis,and Chronic Pancreatitis. This Is So Bad I

i have gastroparisis,and chronic pancreatitis. this is so bad i am disabled from it. i have "episodes" when my stomach shuts down for days to weeks and i continuously vomit or dry heave. i did have a nissen fundoplacation before my diagnosis. my question is, that i have asked 20 or more drs and no real answer.... when i have been sick for a couple days my hands and sometimes feet go numb. ALL the time,even if ive had an hour or two break from being sick. many have said hyperventilation but it stays when i calm and doesnt go away until ive gotten better and able to eat and drink againg for 24 hours. this worries me because my health is very bad and i think of frost bite. the body gets frost bite, along with other things the body does this, in the hands and feet first to put all the bodies energy into the main organs,middle of the body. could this be a sign that im sicker then i thought?