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Have Staff Infection On Scalp, Staff Boils Everywhere. No Relief From Medicine. Proper Diagnosis And Cure?

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Posted on Thu, 9 May 2013
Question: It all started in Nov.I was diagnosed with staff infection on my scalp had staff boils everywhere. I was put on anti antibiotics for 3 months had to stop taking my Humira and Methrotreate shots. I never healed. then went to 2 steriod shots and 2 steriod packs. Still there. Now my head has huge sores practically holes. This clear liquid leaks out keeps my hair glued down. places on my head are so sore. I had several large bald spots in in the beginning. this liquid gels when it hits air. Comes out mouth nose and ears. My face goes numb. I have been to Neuro. he says need pyscristic (mispelled) I am not crazy. It effects my arms also and fingers some days they are so swollen I can't move them. Seen 3 doctors already and was laughed out the door. I know something is wrong. Eyesight is getting worse. I know u think I am crazy. I need help. Have 4 children age 3 - 24 my kids need me. I think is is CF fluid. but I have no medical back ground at all. Just internet 101 which is not a good thing. thank you
doctor
Answered by Dr. Rohan Khandelwal (4 hours later)
Dear Ma'am,

Sorry to hear about your complaints. The problems you are suffering from all fall under the category of extra-intestinal manifestations of inflammatory bowel disease. In simple terms, patients with IBD can have problems involving other parts of their body as well. In your case, you have ankylosing spondylitis and these sores (which can occur in the skin, scalp and the mouth). These sores are a recurring problem and can continuously ooze fluid, which you are experiencing.
Although you are already receiving steroids and methotrexate, I would suggest that you XXXXXXX a good immunologist and seek his opinion regarding immunotherapy. Another option is that you have surgery of the affected bowel and most of these symptoms resolve following that.
Hope you get well soon. Please feel free to clarify any other query.
Note: For more detailed guidance, please consult an Internal Medicine Specialist, with your latest reports. Click here..

Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
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Answered by
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Dr. Rohan Khandelwal

Oncologist, Surgical

Practicing since :2008

Answered : 576 Questions

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Have Staff Infection On Scalp, Staff Boils Everywhere. No Relief From Medicine. Proper Diagnosis And Cure?

Dear Ma'am,

Sorry to hear about your complaints. The problems you are suffering from all fall under the category of extra-intestinal manifestations of inflammatory bowel disease. In simple terms, patients with IBD can have problems involving other parts of their body as well. In your case, you have ankylosing spondylitis and these sores (which can occur in the skin, scalp and the mouth). These sores are a recurring problem and can continuously ooze fluid, which you are experiencing.
Although you are already receiving steroids and methotrexate, I would suggest that you XXXXXXX a good immunologist and seek his opinion regarding immunotherapy. Another option is that you have surgery of the affected bowel and most of these symptoms resolve following that.
Hope you get well soon. Please feel free to clarify any other query.