Question: I have received a written response from my NHS trust to my letter expressing concerns about the insertion of a replacement PEG-J into my daughter who is micro cephalic and has profound, multiple and complex disabilities and health issues. I would ask for an independent medical opinion about the following. I am accustomed to regular replacements which take place under GA with us returning home later in the day. This time the PEG-J tube was found to be emerging during the night of our return home. I took her back to the hospital at 6.30am and the consultant who inserted came to us. He was not one of the regular team whom we knew quite well and have worked with for some years now. Asking "what happened" I explained "nothing happened," she was simply sleeping heavily, lying upon it in her regular recovery position. He seemed to me to be irritated but, of course, very busy, so perhaps rather understandably. When I spoke of the 4mls of water in the balloon he seemed exasperated and declared that " catheters and other such devices (of which I had no knowledge, being 'just a mother')" do NOT have water, they have AIR. I have been changing the water and checking the balloon weekly under specialist instruction for years, so was dumbfounded. From this I learned that he had inflated the balloon with air and that the pressure of her distorted skeleton had probably deflated it in her sleep. As I understand it he performed the procedure incorrectly. I would like to to be able to ask an opinion about a paragraph in the response letter about this........