Question: I'm taking a desperate shot in the dark here but I'm getting old and can't wait for attitudes to change but I also can't risk what I have. I'll keep it short as I can and if you want me to flesh it out I will. When I was an 8 year old child, in 1964, I had a tumor removed from the base of my spine. My dad was air force, it was done in Japan and the navy surgeon who had operated on president XXXXXXX back was flow in. Much later we found out that several parts of my spine were removed to get at it. I was flown stateside for cobalt radiation and when I was 17 two fusions posterior and anterior were done along with rods placed. Anyway everything went bad with time, long struggle to stay off disability, I lost.
My question is when CDC put forth guidelines for opiods to treat pain I was placed on dose that only allows me to sit up in bed mostly. I follow whats going on and they backed off saying its been overreaction. I'm afraid to try for a second opinion for fear of appearance of doctor shopping. I've stuck for years because of that. I'm not looking for anything but ability to participate in life. I have access to my SOAP and COMM scores and I'm low risk. Never asked for anything early. Would it be worth a try to find better relief or would I be risking what I have. When I finally gave in and went for disability it took Senator Nelson's medical team to get it thru. I'm no thrill seeker

I understand opiods very well. Ive been on them for almost a decade. When all my surgeries and my condition went bad I was trying to stay off disability. I tried every other option, procedures, I sent my records to specialists all across the country before it was obvious I had no choice. I know how touchy this is and I'm afraid to pursue more relief in fear of losing what I have.What I'm asking is how hard and fast do doctors in Florida hold to the CDC guidelines. Guidelines that the CDC themselves said have been over used. I have been on a higher dose before this crackdown, which I understand what brought it about, but would I be looking in vain if I seek a doctor willing to carefully bring my medications up? Is the 90 mg a day held hard and fast or are there compassionate doctors willing to help me out of this hell. I'm running out of hope, Not asking for a recommendation to a specific doctor just some educated advice if there is any legitimate above board help out there?>

My apologies. I replied to your reply before fully reading it. A lot happening at once here.
Thank you for your help, I'll try to see a neurologist soon. XXXXXXX