Is It Normal To Have Cutting Like Pain In And Around Veins While Suffering From Dercum's Disease

Question: Hello Doctor. Over the last months my Dercum's Disease symptoms have increased dramatically. In the process I have had around 2-3 doctor appointment each week and getting some help. However, with my confusion of symptoms I have not had hands on medical examinations. I have mentioned my concerns about pain and exhaustive fatigue in my calves and thighs, and that I have very unusal cramping with some permanent feeling of cramping despite a comparative flexibility and magnesium... supplementation. With this is cutting like pain in or around veins, which I have wanted to assume is related to tiny lipomas. I can tentatively pinch them, but to touch them softly aggravates a sharp, cutting like pain. There are many of these posts in my calves and a number in my thighs (more inner than outer). I have had varicose veins since age 16. I am now 57. My varicose veins were 'cut n stripped' when I was around 30 in the wishful search to reduce sciatic (firey, burnign pain) present since age 16 as well. I had been told that I did not have varicose veins despite no physical examination in front of my wife - not that I was worried about them. When I has the varicose opp it was a stab in the dark, and another 2 years before I was diagnosed with Congenital Lumbar Stenosis from L1-L5. My Dercum's has been 'present' for 20 yrs - not the issue in this discussion that I can now tell. Anyway, my varicose veins have worsened again over time - only an occassional painful fatigue problem from them depending on general symptoms... Recently all these leg symptoms started and in the last 3 weeks I have some issues with being able to drive any distance due to the very rapid change in my calves. I mentioned this to my Doctor yesterday - without an examination - and we agreed to balancing my narcotics which I take with an antihistamine as it can be quite awkward with public itching. Now, the venious issue seems to be becoming distinguished from any suggestion of lipomas being at the root - I am personally am not sure of anything I say, just reporting as best I can. Bruising is popping up, and longer redishness along veins, with some disolouration of ankles and change of skin appearance; swelling due to ultrasounded plantar facitis and previous celulitis (due to one garden item I knocked across my shins). The symptoms such that I have put on stockings. I hope you can trust that I am somewhat objective and not merely stressed. I am tired of a beggarly posture for medial help, but will go to local GP tomorrow, but may not get 'my' regular GP. It is getting very discouraging (please do not think depression is driving these remarks) because I cannot keep telling my wife that there is something wrong. I do not want my children to remember me for health issues. What i find is that I feel guilty for taking a doctor's time. I get the issue as I am a very competent, though unemployed, pastoral counselor who 'gets' people, health, and mental health so quick that people open closed doors to me when I present myself to care for them. i think I cloud the complexity of my symptoms. All of my doctors accept that I have Dercum's Disease. I am HLAB27 positive. I have an 18 months wait for an appointment with a Rhematologist, who is unlikely to have heard of DD but would find it hard to avoid - not that the GP would have suggested it to him in letter; I do not have gross deformed lipomas and only a few bigger ones stretching 20 cm with larger masses - 23 excised today from marble to thumb size, etc. Back to veins, I am partially dumbed to them because of the narcotics, but the sharp, pinching pain and the cramping seem there to stay. See i have got myself lost so will just ask that you please help me break this down so I can talk to my doctor and get investigation to avoid DVT (have has a couple - shown up as old DVTscar or something on ultrasound - there another example of why did I have that ultrasound and for what - I cannot track these things, let alone have my GP stay on top of one of hundreds of patients and his ??? Oh my other GPs: one for pain management; one for surgery of lipomas; one, a uni lecturer specializing in muscular-skeletal, who I saw for 2nd opinion on complexity of pain - he said from my files I got from pain doctor that I could not get a better pain Dr. All have said that I did not have key hole surgery for my stenosis as I was told since I have an 8 inch zipper... I think that is all I can regurgitate and both apologize - you really do not need to comment on the more personal aspect of this email. Thank you and please in the same breath.

Dear Dr XXXXXXX your reply was quite confrontingly honest and refreshing. I did get to my GP and he did look at my veins and said that they were very convincingly Phlebitis. It took me to email you and tell my wife (again) to clarify that I go into the Dr surgery in short pants and thongs. I am very grateful for the clear information you have provided and have printed it off. I am particularly grateful that you outline 4 steps to take one at a time. That is so simple and obvious, and really helps me with the perspective I have been looking for. Thank you for weighing through my barrage of communications to help me gain and keep perspective on the 'barrage of complications and multidimensions' of my illnesses. Your kind frankness is really very refreshing and has me smiling with that sense perspective. Sincerely, XXXXXXX XXXX