Suggest Treatment For Ehlers Danlos Syndrome
Patching of the PFO might be necessary.
Detailed Answer:
Thanks for asking on HealthcareMagic.
I have gone carefully through your query. Ehler Danlos is a genetic disease wherein the structure of collagen is faulty. Collagen is a connective tissue that is present in the affected tissues. There is no way that the genetics can be changed (the genes have already done most of the job anyway while laying down the structural foundation of the body). The only way is to deal with it symptomatically. The structural anomalies and aberrations will not kill you but the passage of blood clots through the patent foramen ovale (PFO) to the other side of the circulation is responsible for cerebrovascular accidents (CVA) like strokes and transient ischemic attacks (TIAs) and they could indeed kill you. So, closure of the PFO in your case is necessitated and you should get in touch with a cardiologist or a cardiothoracic vascular surgeon for the same.
Since the problem is in the structural unit, the structural problems are everywhere and you need to deal with the after-effects of the aberrations. The gravity of the aberrations will determine your prognosis and the only way is to deal with things as they appear.
Feel free to write back in case of further queries.
Regards
Hard to comment without knowing the entire details.
Detailed Answer:
Thanks for writing back.
Probably you are referring to the Eustachian valve. The valve of the inferior vena cava (eustachian valve) is a venous valve that lies at the junction of the inferior vena cava and right atrium. It could be that the PFO is providing an adaptive and survival advantage. It is hard to comment without going through the details of an echocardiogram, although a clinical examination is also necessary for correlation. But your cardiologist would be able to comment what exactly can be done in order to minimize the risks of cerebrovascular accidents. For example, taking aspirin will reduce the risk.
It is no use discussing prognosis. You need to understand that you have multiple problems and that you ultimately need to deal with them. That is the simple hard fact. I am quite sure that it would not be too hard, although it is definitely harder than the situation most people face.
Regards