Suggest Treatment For Ehlers–Danlos Syndrome, Fibromyalgia And Depression

Posted on Fri, 28 Aug 2015

Question: my 24 year old daughter has been diagnosed with ehlers danlos syndrome earlier this year. after suffering for the last 4 years. she also has asthma and ibs. she is 5 feet 7 inches and weights 50 kilos. her appetite is poor. she also suffers from fibromyalgia. she has secondary depression also as a result. we just cant find anyone who can help with what exercise to do and how to manage the pain. we need to know what type of physiotherapy to do- specific exercises which will help both conditions. we live in new XXXXXXX if you can direct us to someone who is a specialist in this condition. i am tired of taking her to specialists who have not heard of eds. there is danger of dislocation as well. all the joints hurt. all the muscles hurt. she has flareups every 5-6 days. her moods get very low and she is depressed during this period.

Answered by Dr. Dr. Sudhir Kumar (1 hour later)

Brief Answer:
Needs multidisciplinary approach.

Detailed Answer:
Hl
Thanks for your query

I'm Dr Sudhir Kumar

I have gone through your query and understand your concern. I think as she is having Ehler Danlos syndrome, other conditions such as depression and fibromyalgia are frequently diagnosed in such patients( symptoms are mainly due to Ehler Danlos Syndrome). There is no cure for Ehlers Danlos Syndrome. Treatment is palliative. Close monitoring of the cardiovascular system, physiotherapy, occupational therapy, and orthopedic instruments (e.g., wheelchairs, bracing, casting) may be helpful. Orthopedic instruments are helpful for the prevention of further joint damage, especially for long distances, although it is advised that individuals not become dependent on them until there are no other options for mobility. One should avoid activities that cause the joint to lock or overextend.In XXXXXXX you can consult Dr C. S. XXXXXXX ( Orthopedician) in XXXXXXX Light exercises will be helpful with special care to avoid injuries. You can get her vitamin D level, if found low Vitamin D3 supplements can be given. For pain relief analgesic can be useful.
You can discuss with your doctor about it.

Hope your query get answered. If you have any clarification then I will be happy to help you.

Wishing you a good health.
Take care.

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Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar