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Suggest Treatment For Acute Chronic Non-Hodgkin Lymphoma Stage-4

Posted on Fri, 4 Sep 2015

Question: I HOPE THIS TIME YOU WILL ANSWER. YOU HAVE MY MEDICAL INFO IN MY FILE. SINCE 1994-I HAVE BEEN IN 24 HOUR ACUTE CHRONIC-NON-HODGKIN'S LYMPHOMA-STAGE 4-ONE YEAR TO LIVE. MADE IT TO YEAR 3. -SAVED BY A PIONEER STEM CELL TRANSPLANT BY A BRILLIANT ONCOLOGIST-SINCE THEN 6 MORE CANCERS-ALL IN REMISSION-A MIRACLE-SURVIVED 4 COMAS. FIRST 6 CHOP TREATMENTS-CHEMICAL-VINCRISTINE DESTROYED MY LIFE-PERMANENT NERVE DAMAGE TO MY FEET-WORST-IS NEW XXXXXXX HAMMER PAIN-SPENT $400,00 ON ALTERNATIVES-ACUPUNCTURE, ULTRA SOUND, TENS-HERBS/VITAMINS ARE JUST A FEW-WITH MINIMAL SUCCESS. TRIED EVERYTHING FROM PAIN CLINIC-LASST 3 YEARS NO CONTROL OVER PAIN-TESTS, APPOINTMENTS, HOSPITAL STAYS-NO QUALITY OF LIFE. OPIODS
BEEN INCONSISTENT-LAST 3 MONTHS TRIED FENTANYL PATCH-12, 25, 37, 50-LITTLE RELIEF-STOPPED AT 50-VIOLENT-MOST EXCRUCIATING PAIN IN MY LIFE FOR 6 HOURS--FINALLY TOOK THEM OFF-RELIEF. ANY THOGTS/SUGGESTIONS/COMMENTS. THANNKS. I STATED SEEIJG A NEUROLOGIST-FIRST-ASSESSMENT-MONITOR 15 MEDICATIONS-LAST 2 MONTHS-LOST BALANCE-FALLS/BRUISES-WHELCHAIR, PAIN, NUMBNESS, TREMORS GET WORSE EACH DAY. DESPERATE.

Answered by Dr. Ajay Panwar (57 minutes later)

Brief Answer:
Spinal cord stimulation/Transcutaneous electric nerve stimulation.

Detailed Answer:
Hi XXXX,
Thanks for being on healthcaremagic.com.
I am Dr.Ajay Panwar,a neurologist,here again to answer your query.I am sorry for what you are being through but I can't understand why are you saying 'I hope this time--' when most of us have brought out effective viable options of refractory neuropathic pain for you.

Recapitulating,I suggest that since most of the medicines,patches and alternative therapies for pain have field in your case.You should seek treatment through-
1)Spinal cord stimulation
2)Electrical nerve stimulation
I hope a pain centre with good expertise will help you in this regard.

If you have any follow up questions,I shall be glad to answer.

Regards
Dr.Ajay Panwar,
MD,DM(Neurology)

Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar

Follow up: Dr. Ajay Panwar (3 days later)

DUMB QUESTION-WHY ARE THE OPIODS-BEEN ON FOR MANY YEARS (BODY TOLERANCE) & FENTANYL PATCH-NEW-NEVER USED BEFORE HAVE SUCH LITTLE EFFECT ARE THERE OTHER PATCHES I SHOULD TRY IN THE MEANTIME. IT WILL TAKE SOME EFFORT AND TIME TO ARRANGE A SPINAL CORD STIMULATION-TRIED TENS & ACUPUNCTURE, ACUPRESSURE MANY TIMES-NO EFFECT.
THANKS. PRAYING, GUIDED MEDITATIONS, FAMILY SUPPORT KEEP ME GOING FOR SECONDS, MINUTES, HOURS, DAYS, MONTHS, YEARS, DECADES-WHO KNOWS????I DEFIED ALL ODDS 20 YRS AGO-YOU HAVE ONE YEAR TO LIVE-ITS BEEN 20-FOOLED THE SICK DOCTORS WHO GAVE THEM THE RIGHT TO TELL SOMEONE THEY WILL DIE.. MY 68 YR OLD BROTHER WAS DIAGNOSED WITH TERMINAL KIDNEY CANCER 18 MONTHS-YOU HAVE 2 WEEKS TO LIVE. MOVE HIM TO A HOSPICE-WHY-HE WILL DIE SOON-HOW DOY YOU KNOW-MOVED ANYAYS-WRONG-18 MONTHS LATER HE IS ALIVE. STABLE AND MOVING XXXXXXX A NURSING HOME.. DOCTORS/MEDICAL STAFF ARE NOT GODS. STOP THESE PREDICTIONS-I KNOW, SOME PATIENTS GO TO PALLATIVE CARE IN A HOSPITAL FOR A SHORT PERIOD AND DIE.
THANKS!!!

Answered by Dr. Ajay Panwar (12 hours later)

Brief Answer:
As follows:

Detailed Answer:
Hi XXXX,
Thanks for being in follow-up.

I can understand all the mental and physical trauma you have been through.Refractory pain can behave like so.Though,one should not lose the hope.

Fentanyl patch is the best transdermal analgesic patch,especially for opioid responsive patients.
Further,Spinal cord stimulation is a viable option and could really be of value.

If you have any further questions,I shall be glad to answer.

Regards
Dr.Ajay Panwar,
MD,DM(Neurology)

Note: For more detailed guidance, please consult an Internal Medicine Specialist, with your latest reports. Click here..

Above answer was peer-reviewed by : Dr. Vaishalee Punj