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Suggest Treatment For Fibromyalgia

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Posted on Tue, 22 Aug 2017
Question: Hello! What are the likely causes of the following symptoms:
- 59 yr old male, 150 lbs, 5' - 8" tall
- diagnosed with fibromyalgia 10 yrs ago
- now have internal and arm resting tremor, 3 mo. onset
- 90% smell and taste gone
- numb tongue, mouth, gums, lips, 3 mo. onset
- nausea 24/7
- clumsiness with hands
- burning mouth and tongue, incr. thru day
- diagnosed with dry mouth 1 week ago, 1 mo. onset
- reflexes, strength, balance all checked okay by neurologist 2 weeks ago
- periodontist suggests autoimmune disorder
- only taking LDN 4.5 mg, no other meds, no alcohol, no cannibis, no dairy, no gluten
- exercising daily, eating only organic healthy food
- face numb, burns like sunburn 24/7
- continuously and slowly losing weight every day, weight checked daily at same time
Thankyou!

doctor
Answered by Dr. Dariush Saghafi (30 minutes later)
Brief Answer:
Must agree with the periodontist

Detailed Answer:
Good evening.

As I read your symptoms I am struck by the symptoms of a sensory nature suggestive of some form of demyelination which could be of either a CENTRAL (Brain/spinal cord) or peripheral nature (beyond the spinal cord at the level of the end organ supplied by the nerve such as the tongue, oral mucosa, teeth, skin.

If I were your neurologist I would get an updated MRI scan with GADOLINIUM contrast to try and identify any type of subcortical disease whre myelin is being lost for some reason. The idea of some type of autoimmune disease process such as Lupus, Vasculitis, or other forms of collagen vascular disease, or auto-immune (Sjogren's, etc.) is less likely if symptoms are strictly in the head and upper torso....but I would still do a fairly complete metabolic workup to include thyroid function panel (TSH, FT4, FT3, TT4, TT3), Vit. B12, Vit. D, Folate, ESR, CRP, and other immunological and auto immune markers.

If beta blockers didn't help the tremor then, then this may be some type of basal ganglionic degeneration which could cause a motor tremor solo without affecting much of the sensory systems.

I'm not sure I would put FIBROMYALGIA very high up on the list of likely primary diseases since it was diagnosed 10 years ago before any of this other stuff started to happen and in fact, is more likely to be related to these other numerous system that are affected. What was interpreted as a systemic pain syndrome may have been the prelude to the sensory demyelinating/neuropathic symptoms (if in fact, demyelination is going on).

If I've provided useful and helpful information to your questions could you do me a huge favor by CLOSING THE QUERY and be sure to include some fine words of feedback along with a 5 STAR rating? Again, many thanks for submitting your inquiry and please let me know how things turn out.

Do not forget to contact me in the future at: www.bit.ly/drdariushsaghafi for additional questions, comments, or concerns having to do with this topic or others.

This query has utilized a total of 12 minutes of professional time in research, review, and synthesis for the purpose of formulating a return statement.
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Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
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Answered by
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Dr. Dariush Saghafi

Neurologist

Practicing since :1988

Answered : 2472 Questions

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Suggest Treatment For Fibromyalgia

Brief Answer: Must agree with the periodontist Detailed Answer: Good evening. As I read your symptoms I am struck by the symptoms of a sensory nature suggestive of some form of demyelination which could be of either a CENTRAL (Brain/spinal cord) or peripheral nature (beyond the spinal cord at the level of the end organ supplied by the nerve such as the tongue, oral mucosa, teeth, skin. If I were your neurologist I would get an updated MRI scan with GADOLINIUM contrast to try and identify any type of subcortical disease whre myelin is being lost for some reason. The idea of some type of autoimmune disease process such as Lupus, Vasculitis, or other forms of collagen vascular disease, or auto-immune (Sjogren's, etc.) is less likely if symptoms are strictly in the head and upper torso....but I would still do a fairly complete metabolic workup to include thyroid function panel (TSH, FT4, FT3, TT4, TT3), Vit. B12, Vit. D, Folate, ESR, CRP, and other immunological and auto immune markers. If beta blockers didn't help the tremor then, then this may be some type of basal ganglionic degeneration which could cause a motor tremor solo without affecting much of the sensory systems. I'm not sure I would put FIBROMYALGIA very high up on the list of likely primary diseases since it was diagnosed 10 years ago before any of this other stuff started to happen and in fact, is more likely to be related to these other numerous system that are affected. What was interpreted as a systemic pain syndrome may have been the prelude to the sensory demyelinating/neuropathic symptoms (if in fact, demyelination is going on). If I've provided useful and helpful information to your questions could you do me a huge favor by CLOSING THE QUERY and be sure to include some fine words of feedback along with a 5 STAR rating? Again, many thanks for submitting your inquiry and please let me know how things turn out. Do not forget to contact me in the future at: www.bit.ly/drdariushsaghafi for additional questions, comments, or concerns having to do with this topic or others. This query has utilized a total of 12 minutes of professional time in research, review, and synthesis for the purpose of formulating a return statement.