Question: I've had this for 2 years now it goes in and out of periods of flare ups. When sweating my clothes will be stained in wired colors an example is black will turn a wired light reddish orange color. I also leave some sort of residue residue on walls doors ect. I have these pumps on scalp with fluid within, around the actually hair follicles, very painful and when they burst def. have a strange odor. In the ears and nose there are these waxy type pimples also h. What I thought/ looked like freckles are really not sometimes when itch them this brown waxy stuff comes out, and the "freckle" is gone. Also this can happen while rubbing the skin... It's almost as if just dry skin but instead it's that brown waxy stuff again. Please help I've seen a couple derm, and have tried every pres. Creams shampoos ect. There is!!( well not everything but I've tried MANY diff. Things) It can cause a lot of pain and discomfort due to it being very yay itchy and it burns!!! Please please help any ideas or thoughts anything I would greatly appreciate! Lastly, sorry unsure if this is relevant or not but i have idiopathic urticaria, sometimes comes with a pupa rash, pretty severe raynauds( on med to help) lost over 90 percent of my hair due to these postures and mangling up the hair in knots,clumps. Multiple chalazions in both eyes, and poss XXXXXXX ... I'm not sure if that matters or not.... Thank you so much!!!!

I use both of those shampoos. First it was just the cyclosporine for over a year then said to use both now and just switch every other day. I use fluctionase twice daily spray each nostril. I take (was80)now 40mg Prilosec (tried 30mg) horrible reflux, even looking at possible surgery where they fix up where the esoghus meets the stomach(sorry I don't recall what my doc referred to it as) and chronic rhinitis and sinuous. I take 10mg prednisone (which without I am literally unable to function before I was started on prednisone (started at50)I lived in my bathroom on the flooring was constantly had painful skin rashes all over my body would be swollen my feet wouldn't fit in shoes my legs twice the size, ect.,it was painful, I was unable to move sometimes my step father had to help me with jackets hair brushing my arms I couldn't lift to my head or move around to get them in sleeves... Ugh just horrible, motto mention the nausea and vomiting daily.. I mean literally projectile even water I had to drive around with a paper bag in my car always when going back and forth to class and back to my bathroom floor I went. Now I still get these reactions But def. less and way more function able thanks to prednisone! And I use erythromycin it's a liquid rub on hands feet ect. Daily. I'm on antibiotics at least once a month for sinus congestion idk if that would help.... No ones ever said or had idea to place me on antibiotics for that long, so I will def. mention that. Also I do infusions about every 3 to6 mo anemia due to very low ferritin, last time it was a 5! And now l need Vit d was a 13. I have somewhat high playlets thru this whole thing and no one has had any clue to why, I guess docs not too concerned with it but def. keeping an eye on it last levels was 614. Lastly and most I p. I went to u of m derm hoping for answers and theydid a scalp biopsy as well as some on my legs. It was inconc. For both. I know it said possible AA secondary to lupus and my legs my were needed a deeper biopsy to rule out/confirm PAN..I can't remember all details in which I apaologize but I know it had strophic skin changes/something like that on legs, and the scalp had a couple diff. Little an. Findings: I know it said found few pigment casts and something about more in telogen (I believe was majority) and something about Catagen phase and found few broken close to scalp. But It said nothing about follicularitis........... Allmydo tors joke with me that "I'm definitely unique/special person" haha...... Also that wax I can find it anywhere on my body but it's def. more where there is hair. (which been considering laser hair removal for such as underarms,ect. Do you believe this may help even a little in those places????). Ooh!!!! 2 almost 3 months ago my derm said tines capitis...scalp ringworm, it showed as positive under microscope but when sent out for a culture(took 6 weeks) results were negative????? So I have no idea how that's possible or what that even means....?? I do use ear drops and eye drops only as needed tho. And lastlytheotger medications I'm taking are by stolid 5mg and vesicare 5mg and .(can't remember how to spell it but it's a strong medicine for nausea and vomiting but it starts with an O. This def. is not something that's really common, while your reading and thinking about this, the old saying for thinking outside the box "when you hear galloping footsteps..think zebras not horses". Thank you I appreciate all your help and knowledge sooo very much!!