Question: I believe I have two different questions. I have several spinal disorders, including chronic
low back pain, chronic neck pain, L4/L5
spinal stenosis,
peripheral neuropathy, extreme at times, DDD, DJD, and several others. For the lower back spinal stenosis I decided to have surgery 8/8/12 after several spinal injections and facet burns. The surgery saved my feet as they were purple black every day by 5pm. Only through my massaging and reflexology on my feet did they survive. Thus, my surgery was successful by saving my feet at minimum and allowing myself a tremendous improvement and significant decrease in pain. However, two weeks post-surgery I started to feel unexpected and unpredicted
muscular rigidity. I immediately called my surgeons office and spoke with the nurse regarding my new and scary symptoms. My exact description was, "the morning stretch most people have upon waking up, where your leg muscles and/or legs and arms, stretch to rigidity of all muscles for approximately 30-90 seconds", I am feeling mostly rigid legs, unpredictably, many times a day while walking, sleeping, sitting, etc.
My questions:
1) Why didn't my Neurosurgeon validate my concerns, document the spontaneous rigid legs, and refer me to a
Neurologist with this information?
2) My Neurosurgeon did refer me to a knowledgeable and extremely observant Neurologist. He provided new medications and a follow-up in 3 months. **At this point, I am still unaware that my sensations are valid and real.** Apparently the appropriate protocol was followed, but I also fell 5-9 times within the 3 month period between appointments. I called the front desk many times, but the messages NEVER reached my Neurologist and team with any accuracy.
3) I need a Competent Neurologist close to home at Duke, UNC, or East XXXXXXX with the time and resources to help me understand my choices. I also have white matter on my brain that did not exist in 2005. And my
cervical spine has significant disc desiccation. I have no idea if the cervical disc desiccation can be improved, slowed down, altered or any step to improve my life.
Please provide any advice, explanations and a referral to a knowledgeable Neurologist to address my rigidity, cervical spinal issues, and the white matter on my brain.
I have a 9-year old and a 20-year old. I am 46. I want to live, travel, exercise, play with my children, care for myself while handling my household chores and finding a JOB. The life I just described seems impossible but I am optimistic and will put the hard work in!!
My
chronic pain and very low endurance hinders any possibility of the activities described above actually returning to my life.
Please help,
Kindest Regards,
XXXX
***When replying to my questions above, would you also include my original description (above)?