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What Causes Terrible Pain Over Head And Skull?

Posted on Thu, 3 Mar 2016

Question: I have had terrible bone pain in my skull and feel like facial and skull bones are being destroyed

Answered by Dr. Neeraj Kumar (34 minutes later)

Brief Answer:
Require investigations as described

Detailed Answer:
Hello,
I have gone through your question and understand your concerns.
Pain over head and skull may be due to various causes including tension type headache.
Skull bone changes are seen in few cases like myeloma, Gorhams disease , histiocytosis, metabolic bone diseases.
To label it as Gorham's disease require extensive investigations like vitamin D , calcium , phosphate, parathormone, immunoelectrophoresis for myeloma, renal functions.

What tests have been done till now and imaging findings.
Please upload reports.

Regards
Dr N Kumar
Neurologist

Above answer was peer-reviewed by : Dr. Prasad

Follow up: Dr. Neeraj Kumar (43 minutes later)

I have had ct scan MRI bone scan and nothing is showing. I thought something was going on in 1993 it felt like my eyes clicked and came out of its regular orbit area so went to mayo clinic they did ct scan then but nothing proved what I was saying so I went on with my life until August of 2015 I really noticed the bone by my eyes getting denser and denser and I started loosing frontal bone. I went threw terrible pain. I did get hit on the top of my head at work with a steal shelve but nothing is being proven. I asked if it could be pagets or fibrous dysphasia or osteomylitis and all they say is it would show up in tests. My arm length seems to have gotten shorter also. I don't know what this awful disease is but it is very scary. I don't know where to go for help for this anymore cause no one believes me cause no tests are proving any thing

Answered by Dr. Neeraj Kumar (18 minutes later)

Brief Answer:
Upload reports and images for assessment

Detailed Answer:
Hello,
If all investigations, imaging are normal then it will be highly unlikely to have some organic disease.
Head pain may be related to stress, tension, sinusitis of frontal region.
You can upload images, prescription of previous doctors for assessing clinical examination details.
Regards
Dr N Kumar
Neurologist

Above answer was peer-reviewed by : Dr. Prasad

Follow up: Dr. Neeraj Kumar (37 minutes later)

I know that something is breaking down the bones of my face and skull I'm 61 years old and I know my own facial features and this isn't it

Answered by Dr. Neeraj Kumar (5 hours later)

Brief Answer:
Please upload reports and have a psychiatrist and neurologist consultation

Detailed Answer:
Hello,
Objective evidence of bone loss or destruction is required to investigate and reach a diagnosis.
Pain over face and head can be due to various causes and treatment varies accordingly.
If all imaging and reports are normal then have a consultation of a psychiatrist also for evaluation.
Regards
Dr N XXXXXXX
neurologist

Above answer was peer-reviewed by : Dr. Vaishalee Punj

Follow up: Dr. Neeraj Kumar (5 hours later)

The only thing that came up is low cortisol level in 24 hour urine sample now she is testing a th levels but would that affect the bones in my face and skull

Answered by Dr. Neeraj Kumar (9 hours later)

Brief Answer:
Generalised bone involvement occurs with metabolic or hormonal deficiency

Detailed Answer:
Hello,
Any hormonal imbalance will affect bones of body in a generalised manner.
S. cortisol is helpful in overall growth of body and its optimal secretion is necessary.
Are you having any lytic lesions in imaging of face and skull.
Regards
Dr N XXXXXXX
neurologist

Above answer was peer-reviewed by : Dr. Prasad

Follow up: Dr. Neeraj Kumar (13 hours later)

They have t seen any lesions on ct

Way back in 1993 when I thought something was started with bone structure changes I was only 38 years old then now I'm 61 but back then my arm length or shoulder length must of changed because it would not reach around back to wipe my rear end and it's still like that today. I never told a doctor cause it was to embarising. So what would of caused that all of a sudden

Answered by Dr. Neeraj Kumar (15 hours later)

Brief Answer:
Get a psychiatrist consultation if all reports are normal

Detailed Answer:
Hello,
Restriction of movement of hands may be related to some joint disease rather than bone involvement.
If CT is normal then nothing causing bone involvement.
Pain over face and skull may be due to tension type headache, trigeminal neuralgia, Sinusitis, stress related.
Have a consultation of a psychiatrist too.
Regards
Dr N XXXXXXX
neurologist

Above answer was peer-reviewed by : Dr. Sonia Raina