thanku for your query, see as u know that your daughter has LEOPARD syndrome, well i will tell u few things first about it and then i will advice u what u can do. LEOPARD syndrome:is not a life threatening diagnosis,most people diagnosed with this live normal lives.the kids suffering from this have a variable expressivity that is,one generation may have a mild expression of the syndrome, while the next may be profoundly affected.It is also called as cardiocutaneous syndrome as it involves multiple body systems. It is adviced that, once diagnosed, baby needs routine follow up by a cardiologist, endocrinologist, dermatologist, and other appropriate specialties as symptoms present, as u know your daughter has cardiac involvement MITRAL VALVE PROLAPSE so she needs proper cardiologist follow up and necessary interventions as he says . well if you plan for next kid do plan to go for genetic counselling. i hope i have answered your query to your satisfaction god bless Dr Aarti