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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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How Can I Gather Information About Hirschsprung S Disease And Its Patients?

hi my name is Cnjn I was born with hirschsprungs 47 yrs ago I have yet to find other adults living with this I had long segment and only live with part of my small bowel I would like to know of other people with this disease as all the info is about before and diagnosing h\p hope you can help
Thu, 24 Apr 2014
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Critical Care Specialist,  's  Response
Hi thanks for your question.
Your 47 years, old had undergone large gut resection for hirschsprung s disease and now living with small bowel only. By now you might have gathered lot of knowledge regarding hirschsprung s disease that it is a congenital disease due to lack of ganglion cells (nerve cells) in large gut resulting in constipation and dilatation of the large gut. It is not a very rare disease that you will not find any other patient with this disease. We at our hospital operate usually 1 to 2 cases per month. Consult a pediatric surgeon (Surgeon who is specialist in operating diseases in children) ‘he /she may be able to give you lot of information about other patients
Hope this answers your question.
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How Can I Gather Information About Hirschsprung S Disease And Its Patients?

Hi thanks for your question. Your 47 years, old had undergone large gut resection for hirschsprung s disease and now living with small bowel only. By now you might have gathered lot of knowledge regarding hirschsprung s disease that it is a congenital disease due to lack of ganglion cells (nerve cells) in large gut resulting in constipation and dilatation of the large gut. It is not a very rare disease that you will not find any other patient with this disease. We at our hospital operate usually 1 to 2 cases per month. Consult a pediatric surgeon (Surgeon who is specialist in operating diseases in children) ‘he /she may be able to give you lot of information about other patients Hope this answers your question.