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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Last Stage Of Lewy Body Dementia, Excessive Dry Mouth, Remains Open. Biotene Used. Suggestions?

My mother is in the late stages of Lewy Body Dementia which you probably never heard of. It is most similar to Parkinson's Disease. She has had for years--but has worsened now--excessive dry mouth due to her mouth remaining open all day. We swab her mouth all day but at times it becomes thicker and more rope-like. We use Biotene in her mouth but she can't swallow well so that is an issue. She is tube-fed. Would more water help? What other solutions are there? I have been asking this question of nurses, doctors, dentists for years. Thank you.
Mon, 20 May 2013
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Internal Medicine Specialist 's  Response
hello

Lewy body dementa is the second most common cause of dementia after alzheimers disease

this disease is famous for hallucination, dementia, loss in self interest, severe mouth and body muscle weakness, urinary incontinence and open mouth syndrome

In open mouth syndrome , shows the more severe the dementia the more opening of mouth hence more urinary incontinence

have you ever slept under a fan with mouth open?

Same appears in open mouth syndrome due to lewy body dementia

You cant close the mouth but following will help
Mouth was like listerine
regular posture changing
placing a wet net cloth on mouthincrease the dose of donepezil or memantine
mucolator satch use to decrease saliva thickness
Keeping the mouth wet with a dropper , but i wont recommend high water intake as sodium is low in lewy body dementia , more water will cause more sodium dilution, moderate use of water is recommended

hope this helps

take care

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Last Stage Of Lewy Body Dementia, Excessive Dry Mouth, Remains Open. Biotene Used. Suggestions?

hello Lewy body dementa is the second most common cause of dementia after alzheimers disease this disease is famous for hallucination, dementia, loss in self interest, severe mouth and body muscle weakness, urinary incontinence and open mouth syndrome In open mouth syndrome , shows the more severe the dementia the more opening of mouth hence more urinary incontinence have you ever slept under a fan with mouth open? Same appears in open mouth syndrome due to lewy body dementia You cant close the mouth but following will help Mouth was like listerine regular posture changing placing a wet net cloth on mouthincrease the dose of donepezil or memantine mucolator satch use to decrease saliva thickness Keeping the mouth wet with a dropper , but i wont recommend high water intake as sodium is low in lewy body dementia , more water will cause more sodium dilution, moderate use of water is recommended hope this helps take care