Hello and Welcome to HCM
Don't get discouraged, but there are no standard reference diets for your syndrome. I can give you some ideas based on the literature. This is something I would have to research and have an extensive conversation with you to tailor a personalized diet for you and your condition.
Here are some general guidelines:
1. Are you anemic or being treated for anemia?
Ask doctor about this as hematology generally handles anemia in Peutz Jeghers or the Oncologist(if cancer has developed) or even the GI Specialist, but someone should have told you about whether you are anemic, the deficiencies the treatment and I could guide you as to supportive foods.B12,
Folic Acid deficiencies will cause
macrocytic anemia and
iron deficiency will cause
microcytic anemia. Low iron is most commonly found and iron cannot be taken with milk or calcium sources, so please look into this matter.Also, the doctor may prefer infusions if iron deficient to avoid the gastrointestinal tract.
2.
Omega-3 fatty acids may help in your situation. You may get this from fatty tuna, fatty fish, flax seed oil/seeds or supplements if you
consult doctor.
3.Incorporate more high antioxidant foods like blueberries ( can be put into smoothies) and using cranberries in more recipes, the fresh berry, not just juice.Several lab studies have shown these foods to be beneficial in preventing cancer, but more human research is needed.
4.Has the doctor discussed fiber?
You can always feel free to come back later after you find the answers to the above and see if we can work on something more specific. Regards, Kathryn Shattler, MS,RDN