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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest Treatment For CHARGE Syndrome In A Child

I have an 11 month old who has CHARGE syndrome, she s had a very complicated UTI caused by psudomosis (sp) she was admitted after suffering almost 3 months to have IV s. Since then she has come home and keeps being sick, her sick smells of fish and her stools are very loose with bright green in and smell lie stomach acid. She s continually fed neocate through a PEG tube as she has an unsafe swallow. Is this related or is something else going on? She seems uncomfortable in her tummy. She s on trimethoprim but has had before with no reactions. I m struggling to keep medicines and extra fluids in her:
Sat, 29 Sep 2018
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Pediatrician,  's  Response
Hello,

After recovering from UTI is you child gaining weight normally?

There is a possibility she might be having malnutrition and consequent increased vulnerability for further infections.

Frequency and consistency of stool also matters, although she is on prophylaxis she might need a urine complete exam for break through UTI and a stool exam as well.

Hope I have answered your query. Let me know if I can assist you further.

Take care

Regards,
Dr. SHEHLA USMAN , Pediatrician
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Suggest Treatment For CHARGE Syndrome In A Child

Hello, After recovering from UTI is you child gaining weight normally? There is a possibility she might be having malnutrition and consequent increased vulnerability for further infections. Frequency and consistency of stool also matters, although she is on prophylaxis she might need a urine complete exam for break through UTI and a stool exam as well. Hope I have answered your query. Let me know if I can assist you further. Take care Regards, Dr. SHEHLA USMAN , Pediatrician