Suggest Treatment For Lung Sarcoidosis

Hello, my name is Debbie Harmon and I live in Northern Nevada near Reno. I am 44 years old, 5'5" and weigh about 180lbs. I was diagnosed with Sarcoidosis about 2 and a 1/2 years ago through a lung bx. I have been pretty sick since diagnosis. I have been on and off, mostly on, steroids for the swollen lymph nodes in my chest and granulomas in my lungs. It seems to help for a while but as soon as I am weaned off of them, the inflammation returns with a vengence. I have failed the following medication, plaquinil, leflunamide, methotrexate, and humira. I am pretty frustrated with the care I have been receiving in the area. I spoke to a doctor in San Fransisco today and she had seen my bx results and thinks I may have pnuemonitis. I am not sure where or what to do or believe at this point. Any advice would be appreciated.