I am 40, 5ft 7, 280lbs when I was 24 I started getting muscle cramps throughout my upper body, around my ribs. They became more severe as I got older. I have been on baclofen and oxcarbezepine. I was first told I had Dystonia, and now Stiff Persons Syndrome. The muscle cramps slowly started effecting different areas. My arms, neck, tongue, feet, but mainly severe in my trunk area. It seems to be worse when it is cold outside. Getting the shivers from being cold can set off multiple cramps throughout my body in a way that almost locks my body down. Not sure how to explain that, I just freeze up from the cramps. I want to know if this could be something else, rather than Stiff Person syndrome. Is there a better medicine that could help? I also now have flinching throughout my body on a daily basis. There is nobody that I know that I can ask or compare symptoms with SPS to see if that is actually what I have.