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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest Treatment For Plexiform Neurofibroma In Abdomen

My grandson has plexiform neurofibroma in his abdomen! Will it continue to grow if not treated? If he has the NFi gene, can it be treated with meds? If not what kind of treatment is available. The mass in his abdomen also shows it s wrapped around major arteries! What now?
Wed, 28 Jan 2015
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Radiologist,  's  Response
hi,
Thanks for writing in.

Plexiform neurofibromas in strategic locations are to be removed through skilled surgery. It is important to know the size and extension of the tumor and if there are any cancerous areas which are developing within. In that case, you must consult an oncosurgeon and vascular surgeon and know the implications of the tumor causing pressure effects or the rare possibility of the tumor infiltrating the arteries. Medicines are not a treatment option for these tumors. Though the tumors are usually benign and harmless, increase in size with time and malignant transformation cannot be entirely ruled out in your grandson. That might take years to happen but it can be easily prevented by getting treated through surgery at present.
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Suggest Treatment For Plexiform Neurofibroma In Abdomen

hi, Thanks for writing in. Plexiform neurofibromas in strategic locations are to be removed through skilled surgery. It is important to know the size and extension of the tumor and if there are any cancerous areas which are developing within. In that case, you must consult an oncosurgeon and vascular surgeon and know the implications of the tumor causing pressure effects or the rare possibility of the tumor infiltrating the arteries. Medicines are not a treatment option for these tumors. Though the tumors are usually benign and harmless, increase in size with time and malignant transformation cannot be entirely ruled out in your grandson. That might take years to happen but it can be easily prevented by getting treated through surgery at present.