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Suggest Treatment For Plexiform Tumors
My son has NF multiple plexiform tumors. They removed as much as they could of one in the bend of his elbow that grew rapidly. It was tested and benign. Now 8 months later it is the size of a golf ball and the ones in his armpit are growing and painful also. We have been told he has thousands and thousands of these agressive plexiform tomurs. They believed the one in the elbow was mailgnant and wouldn t let us leave the hospital for about four days I am worried that it really wasn t benign what should I do?
Fri, 2 Jan 2015
First of all, there is no treatment to prevent the development of these tumors in the future. You just need to keep them under surveillance and if any of them grow rapidly or become painful, then get it removed. As far as the malignant part is concerned, if the hospital where you got it removed has a standard lab then you need not worry. If not, or if you want to, you can get a second opinion from any of the standard labs in your area by taking the blocks and slides from the lab where it was reported benign. Most labs keep blocks and slides for a year.
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