Tingling Feet, Lips, Nose. Done IVIG Infusion. What Could This Be?
hello, I am a 22 year old male. About five months ago I woke up one morning feeling tingling all in both of my feet. It went away once I got up and began moving. This next couple of mornings it was the same thing. Well almost two weeks in this had progressed and was pretty much constant. I began feeling tingling in my lips and nose. I have a very sore spot in my back that sends a wierd electric signal up my neck to the midline of the back of my head. After going to ER they said it sounds like MS. I went to my primary doctor who said it sounds like Guillain-Barre syndrome . He referred me to a neurologist whoo confirmed it was Guillain-Barre syndrome after only doing a nerve conduction test. He said it is my periphreal nerves sp its not MS because that would be my Central Nervous System . The symptoms got to where I could not walk. I had been ordered to go through a week of IVIG infusions. This helped give me an edge but I haven t seen the recovery that my doctor expected. I told my neurologist that I have tension headaches and that I have had a sore neck (muscles) since this has started plus a sore throat. He told me that I can consult another neurologist if I wished. I just wanted some advice to what this could be. Thanks.
Based on details you had Guillain barre syndrome ,which is an autoimmune disease affecting the peripheral nerves. IV IG has prevented further progression of the disease.It is the drug of choice.It takes a month to 3 months for complete recovery.Meantime you need to continue with physiotherapy which is most important.
Tension type headache is due to the worry of the disease.You need to have neck relaxation exercises and local analgesic application at neck.
If headache is worrisome and the weakness is worseing from beginning then need further evaluation.
Hope this would help you
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Tingling Feet, Lips, Nose. Done IVIG Infusion. What Could This Be?
Hi, Based on details you had Guillain barre syndrome ,which is an autoimmune disease affecting the peripheral nerves. IV IG has prevented further progression of the disease.It is the drug of choice.It takes a month to 3 months for complete recovery.Meantime you need to continue with physiotherapy which is most important. Tension type headache is due to the worry of the disease.You need to have neck relaxation exercises and local analgesic application at neck. If headache is worrisome and the weakness is worseing from beginning then need further evaluation. Hope this would help you