At age 10 I had a spinal fusion due to scoliosis. I have always had pain...especially in my shoulders, neck and upper spine. I have always refused pain mangement. Four years ago...at age 22 I started having numbness in my arms and could not lift up heavy things. Also my harrington rod on the right side starte to protrude out of my back. I had a doctor remove some of that rod, but the numbness was still there. So about a year ago all my symptoms got worse and I hadto stop working. I finally got a spine specialist to do an MRI and he said I had syringomyelia. He said it looks like I have had it all my life. He did a pin prick test on me and I felt nothing until he got to my neck also cold and hot was messed up. He said I just have to deal with my diagnosis and learn to adjust to what will happen. What will happen? The things know now are...with my body my left calve muscle does not react...my right foot does not react...my muslce in my shoulders have stop functioning...is my body just going to stop before I am 30??