Hi,I am Dr. Santosh Kondekar (Pediatrician). I will be looking into your question and guiding you through the process. Please write your question below.
What To Do If Child Was Said To Have Short Life As He Is Having Imbalance Since Birth?
Dear sir ,My son (22/1/2004 date of Birth).Having inbalance while walking,Eyes are little red . problem is from Birth but we realize after
2 years of birth . Now so many doctors Treatment done but not ok
one Neorologist told his life is only around 17 -18 years .He is going to school ,very clever but writing very slowly .Alfa Serum Pheto protein test done and it is very high ,that why doctor told that his life is very small .pl. suggest what to do ?
Hi...Thank you for consulting in Health Care magic.
By what you quote, I feel (with red eyes and imbalance while walking) your son is having ATAXIA TELENGIECTASIA. Usually they are wheel chair c=bound by 10-15 years but it all depends on individuals. Some individuals with later onset of disease and slower progression survive into their 50s. Currently there is no treatment for this.
Hope my answer was helpful for you. I am happy to help any time. Further clarifications and consultations on Health care magic are welcome. If you do not have any clarifications, you can close the discussion and rate the answer. Wish your kid good health. Dr. Sumanth MBBS., DCH., DNB (Paed).,
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What To Do If Child Was Said To Have Short Life As He Is Having Imbalance Since Birth?
Hi...Thank you for consulting in Health Care magic. By what you quote, I feel (with red eyes and imbalance while walking) your son is having ATAXIA TELENGIECTASIA. Usually they are wheel chair c=bound by 10-15 years but it all depends on individuals. Some individuals with later onset of disease and slower progression survive into their 50s. Currently there is no treatment for this. Hope my answer was helpful for you. I am happy to help any time. Further clarifications and consultations on Health care magic are welcome. If you do not have any clarifications, you can close the discussion and rate the answer. Wish your kid good health. Dr. Sumanth MBBS., DCH., DNB (Paed).,