Question: I was diagnosed with Secondary Adrinal dificiancy aprx. 10 years ago; however, in the last 1.5 years I became increasingly ill and bed ridden and my endocrinologist that I was seeing was no longer available to me. I went to a new Endo and she did several other test and stated I had Primary Adrinal Difficianciy related to my Putuatary gland not functioning. I am incrieasingly getting sicker and I have looked on the National Adrienal Foundation web site and they suggest a test called 21-Hydroxylase-Autoantibodies. I have already been diagnosed with several other autoimmune diseases listed in the pamplet that I printed off regarding the test. Currently I am seeing an immunoligist who statest that I have Mucoutaneous Candidiasis (severe in my mouth), but that he will not jepordize my health to treat this condition. Should I try to get the 21-hydroxylase Autoantibodies test done. Or, is there a specialist within the Endocronology department that I should seek out? My health is depleating day by day and, as I am only 40, I fear I my die from thes complications and the doctors in my area that do not care. I certainly do not want a life lived out in my bed...which is what I have been doing over the past year and a half and the doctors just tell me to learn how to deal with it!

Thank you for answering my question. I would have like more information on Primary adrenal insufficiency, as that is what I am diagnosed with.

They have not scanned my adrenal glands, but did an extensive MRI and looked very closely at my Pituitary glad. Essentially, they said that my pituitary gland is "dead" and that I know have Primary adrenal insufficiency, but they are still treating me as if I still have secondary adrenal deficiency. However, as the months passed by my whole body began to shake uncontrollable and I could not walk on my own, I began passing out when I got out of bed just to walk to the bathroom; I do have epilepsy and I began to have more and more seizures. My husband took me to see my Endo after looking up Adrenal Crisis, but she just looked at me like there was nothing wrong and told us to go home. Several hours later when I was unconscious my husband took me to the emergency room and the Dr. there did not know what to do for me, so he just gave me pain medication and several sailin bags. We looked up on the National Adrenal Diseases Foundation site and found out about the 21 hydroxylase Autoantibodies test. After reading it we realized that I had already been diagnosed with several of the autoimmune syndromes that it listed, and that is why I want to be tested. I have been diagnosed with Mucocutaneous Candidiasis, Pernicious Anemis, Hypoparathyroidism, Alopecia, Autoneropothy, Raynoids and that is just a few of the ones I have.