Brief Answer:
Management and Treatment Aspect

Detailed Answer:
Dear

Thanks for raising your concern and the recommended guidelines for his age is/are:

A. whenever the term 'dystrophy' is used in clinical medicine it implies a condition which is genetic in origin as such following things should be kept in mind:

1. Prognosis and management of the said disease i.e. ALD depends upon the stage at which it is recognized and going by his age i.e. 6 years the phenotype comes out to be " Childhood Cerebral Adrenoleukodystrophy" ALD which is characterized by emotional instability, hyperactivity and disruptive behavior along with progressive demyelination and vegetative state without treatment.

PS. Since they are from Canada, the medical care and facilities will be much more sophisticated and will be knowing every best possibilities available to treat the disease but before managing with any Alternate System Of Medicine one should take into account the following:

i. The mainstay of treatment of childhood ALD is bone marrow transplant. [allogenic]
ii. Since studies and research indicates that people with this disease are prone to develop adrenal insufficiency thus if the Medical care is directed to prevent this insufficiency, chances of preventing future complications and better monitoring of patient becomes better. [hormone replacement]

2. Since pathogenesis of ALD is associated with detection of VLCFA [very long chain fatty acids] thus avoid beef, pork, lamb, cheese, whole or reduced-fat milk and dairy products, palm oil, and coconut oil.
PS. XXXXXXX Oil was made by one of the sufferer parents which inhibits elongation of fatty acids in body, they can use it.

3. Patient having onset of symptoms between 3-10 years tend to have a more rapid decline than those whose onset is later and may not live till adulthood.

4. Since it is a genetic disorder, thus symptomatic relief is possible and since affect the brain [myelin sheath] thus apart from some Panchkarma Procedures following medicines can be worth trying after consulting homeopathy Physician there:

i. BARYTA CARB-30 ( 3 drops once a week)

ii. Combination of:

. XXXXXXX Phos-3x
. Ferr. Phos-3x
. Calc. Phos-3x thrice a day (1 grain each)

Dr. Munish Sood
Consultant & Physician
Naimittika

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