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Suggest Treatment For Derucm's Disease
Question: I do not receive actual treatment for Derucm's Disease though I have 2 official diagnosis P Dr XXXXXXX Herbst from Arizona came to Australia and Prof XXXXXXX Soyer of various positions in UQ, Greenslopes, Head of Dermatology at PA Hospital Brisbane and Institute of Dermatology Qld. Australia barely recognizes and does not treat DD. I am being started on public hospital hydrotherapy and offered support to emerge under Dr Soyer at end of March. My botched (8 different doctors -0 6 muscular skeletal - said it was botched, not key hole and desperate efforts to get urgent bone graft from sacroiliac area evident with 8 inch scar. PA Hospital Lumbar Stenosis surgery - I walk 100 meters and need 5 hours painful sleep to become semi-functional - so I have plans A,B,C, with sub-categories to avoid D=danger. Part of this is to find affordable IV OZone in reputable 3rd World, or IV Lidocaine in 3rd world - I will get here sooner or later as all I have to do is ask politicians to walk with me for 5 minutes and my knees give out and legs go swinging as if I am loosing it. I am positive about my plans. I keep others in mind. We do not have free money, but I can strategize a few things in which I get a Finge Benefit or non-taxable donation for worship and preaching leadership to assess my capacity under scrutiny (if God is in this then it will be ok). The Ozone has been shown to work but is not sanctioned in Australia - I received non-medicare 12 priced experiments from Russian trained surgeons who immediately saw the different lipomas from 10 feet where as Australian doctors do not have the will to see or even examine them despite excision of 26 including angioploma(s?). These immediately asked to touch the lipomas remarking in astonished fashion that this is their work and they had not seen these before. Their treatment worked (prolozone), 100% pain free, but I did not know that to finish with aggressive massage was counter lymphatic drainage that I needed. I cannot negotiate that and the cost interstate would be dearer than 3rd world... Also Lidocaine cream does not work but the lidocaine patch does work. Too expensive and I cannot get enough freebies - the idea is to heal and not band aide. I do a lot of self-healing to extent I can cope in a big family short of capacity to pay for support -0 stimulate lymphatics and left-right brain. I even have to get driven around if travel over 20 minutes as my type 3 encapsulated and diffuse non-encapsulated lipomas in arms, chest and legs get triggered - even as a passenger. I am looking to find a 3rd world hospital for genuine ozone. Dr Young Ki Shim in Singapore seems a person to ask??? But Singapore is not exactly cheap. I have a goal to be in full time employment by 2017 or earlier now that I know I have hope. It tok 2 years to realize that the use of Lyrica and Keppra I was allergic too and were killing me as I was paralysed despite help iwth some (some) pain management. I want off narcotics which constipate, and I want off sleep meds that block the refreshing deep sleep. I want to dream again. I will check emails tomorrow and I pay by pay pal. I do have some political support for being treated but they are playing with my life, and I am avoiding that. I had 16 years of undiagnosed 3 levels of lumbar stenosis because I was considered too fit and flexible therefore they did no scans - when I asked for blood tests I was considered pushy and told to read papers of doctor patient relationships (I was active as a pastor who found a need and met it, I referred when it was beyond my competence); It took 2 yrs to be told I had had XXXXXXX River Virus but do not have it 'now' since I had antibodies. That was when my lipomas began to grow as I was told you sit behind a desk (joke-I rasied 6 children, chopped some of the hardest wood in Austalia, and stump and rocked picked on my in-laws farm on holidays; I also moved 12 tone rocks and stumps others side skirted, even a 3/4-1 tone bush rock using leverage for the fun of it; I dug and transported and unpacked 9 tone of paving in one day because it was free if I did it with stenosis on 3 levels the size of the inner tube of a bic pen. All that pride was my down fall.) It took 28 yrs to get a dignosis of Dercum's Disease to be told that they will not treat it, so I have pushed and know that I will get some support but when is not said till March 31st. I live with hell, and my 88 yr mother does not want me to drive because she can see the physical dysfunction, same with my immediate family and the federal politician PA, but she says they cannot make hospitals admit me even though that is where I belong. I intend to see if these guys are real in wanting to help 3rd world countries with health and housing: H.R.H Bishop XXXXXXX Kember3rd
World Chairman (UN&ICG) at United Nations & International Commercial Group
World Chairman (UN&ICG) at United Nations & International Commercial Group
Brief Answer:
We indicate questions with the symbol ?
Detailed Answer:
Dercum's Disease is really bizarre. No feature of it makes any sense whatsoever.
1) fat evolved because it is INERT. Oil separates from water. It can be used to define surfaces ranging from cell membranes 5 molecules thick to the 'vein' you pull off the back of shrimp (nerve axon covering) to fatty tumors sometimes weighing over 6 stone.
None of these are painful. Dercum's Disease is. Does. Not. Make. Sense. Yet, all the very best scientists agree that it is painful. It is not due to inflammation. Frankly you can tell me more than the literature. If the pain is stinging and the area red, doesn't go with the literature on Dercum's Disease but it IS inflamed. The spinal one is due to hitting a nerve and is surgically correctable. Actually, you've discovered something that is probably publishable. If it is fixable with lidocaine, then it is nerve irritation that causes the pain.
2) Why multiple fatty tumors? It isn't genetic, it isn't from a chemical spill or there would be clumps of people with it, not individuals. If it is a tumor from a genetic acquired mutation, how can it pop up multiple places? Cancer/tumors/mutations are like hitting the lottery and getting a very bad prize. Multiple separate tumors would be like hitting the lottery 20 times in a row in 20 different stores. You would be thrown in jail for it because nobody would believe it was coincedence. Dercum's Disease is that rare, but the underlying phenomena is even weirder. It can only be from the unregulated outpouring of a growth factor that causes all fat to grow. There is some tumor/growth of a gland somewhere, and if it were removed you'd be fixed.
Well, you should ask, "gee, what to do about the pain". Lidocaine works by one particular way of damping nerves. Many many cheap, safe, pills do the same. Amitryptiline, anti-epileptics (valproate, or dilantin would be a good start), anti-arrhythmia heart pills (quinine or encanide are more specific for this perhaps, amiodarone hits a very broad range of nerve functions) are SOME but not ALL of the drugs LIKELY to act in a lidocaine manner.
But you didn't have a question mark so I cannot be sure what you are asking. But discovering the cause, cure, and pain treatment I think is probably enough?
We indicate questions with the symbol ?
Detailed Answer:
Dercum's Disease is really bizarre. No feature of it makes any sense whatsoever.
1) fat evolved because it is INERT. Oil separates from water. It can be used to define surfaces ranging from cell membranes 5 molecules thick to the 'vein' you pull off the back of shrimp (nerve axon covering) to fatty tumors sometimes weighing over 6 stone.
None of these are painful. Dercum's Disease is. Does. Not. Make. Sense. Yet, all the very best scientists agree that it is painful. It is not due to inflammation. Frankly you can tell me more than the literature. If the pain is stinging and the area red, doesn't go with the literature on Dercum's Disease but it IS inflamed. The spinal one is due to hitting a nerve and is surgically correctable. Actually, you've discovered something that is probably publishable. If it is fixable with lidocaine, then it is nerve irritation that causes the pain.
2) Why multiple fatty tumors? It isn't genetic, it isn't from a chemical spill or there would be clumps of people with it, not individuals. If it is a tumor from a genetic acquired mutation, how can it pop up multiple places? Cancer/tumors/mutations are like hitting the lottery and getting a very bad prize. Multiple separate tumors would be like hitting the lottery 20 times in a row in 20 different stores. You would be thrown in jail for it because nobody would believe it was coincedence. Dercum's Disease is that rare, but the underlying phenomena is even weirder. It can only be from the unregulated outpouring of a growth factor that causes all fat to grow. There is some tumor/growth of a gland somewhere, and if it were removed you'd be fixed.
Well, you should ask, "gee, what to do about the pain". Lidocaine works by one particular way of damping nerves. Many many cheap, safe, pills do the same. Amitryptiline, anti-epileptics (valproate, or dilantin would be a good start), anti-arrhythmia heart pills (quinine or encanide are more specific for this perhaps, amiodarone hits a very broad range of nerve functions) are SOME but not ALL of the drugs LIKELY to act in a lidocaine manner.
But you didn't have a question mark so I cannot be sure what you are asking. But discovering the cause, cure, and pain treatment I think is probably enough?
Above answer was peer-reviewed by :
Dr. Chakravarthy Mazumdar
Dear Dr XXXXXXX Wachsman,
thank you for your reply and approach. I glanced then printed the article to take out with me. Since, I have read it twice and smile. I appreciated your honesty, your science and your humour, the later really valuable as has happened before in this service. Dr Francis XXXXXXX Dercum was clearly a bit of a genius and stuck his neck out on this one. It is not clear if President Woodrow XXXXXXX had the disease, but something caused Dr Dercum to have all of his unpublished research and records destroyed on his death.
You have provoked me to try a number of innovative self-treatments by the way you approached your understanding of water and oil, knowing that they use finer oils to break down coarser oils.
I meant to ask if there are 3rd world hospitals equipped and cheap enough for me to access IV ozone and or IV Lidocaine. The fight for treatment here is getting too hard. I have plans A,B,C with sub points that I must re-write to avoid plan D=Danger. I sometimes carry this around with me if I am away from home long along with my medical files. I cannot lie on hips, shoulders, cross legs, put hands on thighs, etc. I cannot even touch my chest lying down... There in are my quesitons about 3rd world hospitals as I have not been able to work in such a long time and have inverted our mortgage for the sake of other needs.
thank you for your reply and approach. I glanced then printed the article to take out with me. Since, I have read it twice and smile. I appreciated your honesty, your science and your humour, the later really valuable as has happened before in this service. Dr Francis XXXXXXX Dercum was clearly a bit of a genius and stuck his neck out on this one. It is not clear if President Woodrow XXXXXXX had the disease, but something caused Dr Dercum to have all of his unpublished research and records destroyed on his death.
You have provoked me to try a number of innovative self-treatments by the way you approached your understanding of water and oil, knowing that they use finer oils to break down coarser oils.
I meant to ask if there are 3rd world hospitals equipped and cheap enough for me to access IV ozone and or IV Lidocaine. The fight for treatment here is getting too hard. I have plans A,B,C with sub points that I must re-write to avoid plan D=Danger. I sometimes carry this around with me if I am away from home long along with my medical files. I cannot lie on hips, shoulders, cross legs, put hands on thighs, etc. I cannot even touch my chest lying down... There in are my quesitons about 3rd world hospitals as I have not been able to work in such a long time and have inverted our mortgage for the sake of other needs.
Brief Answer:
Congratulations
Detailed Answer:
First, thank you for being the most appreciative person I've answered. Second, you've found the two hardest to implement treatments. Lidocaine IV is monitored, safe, very likely to work if the patch did. BUT, lidocaine is removed by the liver in minutes. It wears off like immediately. There's very few treatments that are harder to have work than lidocaine, but ozone is probably one of them. Ozone is highly reactive. if anyone believes free radicals are bad, then they need to avoid ozone becuase it is one. It is highly reactive and I doubt it can stay in the body even for minutes. You DON'T have evidence it will help as far as I can tell. So... other pills mentioned that should be about 1% the cost of IV ozone, can't be a worse option.
There are a huge number of other pain modalities. READ about Capsaicin, but I cannot recommend capsaicin as one of the first 6 to 8 treatment options on anyone. Oh, if massage works, then TENS units work.
Congratulations
Detailed Answer:
First, thank you for being the most appreciative person I've answered. Second, you've found the two hardest to implement treatments. Lidocaine IV is monitored, safe, very likely to work if the patch did. BUT, lidocaine is removed by the liver in minutes. It wears off like immediately. There's very few treatments that are harder to have work than lidocaine, but ozone is probably one of them. Ozone is highly reactive. if anyone believes free radicals are bad, then they need to avoid ozone becuase it is one. It is highly reactive and I doubt it can stay in the body even for minutes. You DON'T have evidence it will help as far as I can tell. So... other pills mentioned that should be about 1% the cost of IV ozone, can't be a worse option.
There are a huge number of other pain modalities. READ about Capsaicin, but I cannot recommend capsaicin as one of the first 6 to 8 treatment options on anyone. Oh, if massage works, then TENS units work.
Above answer was peer-reviewed by :
Dr. Chakravarthy Mazumdar
Dear Dr. XXXXXXX Wachsman,
I am off to bed - ready ages ago, but when 24 hr of pain meds kick in they disrupt sleep too. I have used capsaicin cream for years on on and off - to my amusement as the external burning is good distraction from the internal pains, but does not change anything for me. As a young man told I was too fit to have a health problem I rubbed on what I could buy at the time, Finalgon, put on warm football socks then warm track suit. My mates would complain about pain before they started running. I learned to zip my mouth - once said to doctor excising my lipomas when he said that I should tell him when the anaesthesia began to wear off (a difficult one, the only one that regrew that he worked on that I was aware of). I said I would begin to laugh when the anaesthesia wore off, which is what happened.
I had a hospital referral to a specialist that I attended today - the specialist said that the referral was invalid, that the hospital doctor likely knew that was so, as it lacked any medical history and merely asked me to differentiate my sciatic pains from my neruopathic pain of Dercum's Disease. By the time I tided my paper work and calendar the receptionist had hard filed that dysfunctional referral and had two other clients, so asked me to do a favour and get my own copy of it from the original doctor herself. I stopped on the way home to get it only to find that she no longer works 'there.'
I am going to my local GP to start the process again wiht his approximate history of my case and medications - he is very imprecise in his notations, but it will get me in so that I can 'cover my back' in relation to a rapid need for further surgery that my 88 yr old mothers who had a temporary heart balloon inserted this week, and has tongue and lung cancer, said that I was in far worse condition than her and should not even hold a driving license -the reason I only go out after 10-10.30 AM, then collapse on bed when I get home after walking only 75-150 meters.
I am still interested in going to overseas hospitals as I followed Drs XXXXXXX XXXXXXX and Schallenberger who wri(o)te 'Second Opinion.' I know it is desperate, but the 1/2 price 2 sessions of Prolozone offered me by Dr XXXXXXX Dulitszky in Sydney were remarkable - if he only trusted that i do left-right brain exercises and accepted that my then shocking dementia was induced by Lyrica, instead of preaching 'new age healing' which I use and accept (bounce on edge of bed to stimulate lymphatic while counting to 100 out loud and moving hands and arms in various clockwise or counter-clockwise fashion; EFT, TFT, EMDR, Mindfulness, etc). But the advancement of my disease got ahead of me and I care for XXXXXXX (Amy's Story 60 Minutes au) which set us up for fraudulent psychological services... to invert our mortgage.
My understanding of Ozone is that once it is extracted and combined with Ozone it immediately forms a metabolite which has immense healing properties. I am using Bromelian and Quercertain for a similar reason: to heal leaking gut and blood vessels to prevent them leaking the toxins into adipose tissue.
My goal has to be to return to full time work in 2017 now that I have an idea of what I am up against.
I am happy to pay more for this service with you because I do not get to talk to any doctor face to face at this level. All I can do is print off a discussion and delete all details and give it to a doctor, but I see no value in doing so, as the most reading they do is gloss over what they tell me I cannot access, then report to me what I already know - I honestly do not tell them what I have done or how I do it: 1 Adiposis dolorosa - Wikipedia, the free encyclopedia https://en.wikipedia.org/wiki/Adiposis_dolorosa
2 Dercum's Disease - National Organization for Rare Disorders
3 Learning About Dercum Disease https://www.genome.gov/0000
4 Home - NORD (National Organization for Rare Disorders)
5 Adiposis Dolorosa: Background, Pathophysiology ... emedicine.medscape.com/article/0000-overview
6 Adiposis dolorosa - Wikipedia, the free encyclopedia en.wikipedia.org/wiki/Adiposis_dolorosa
7 Degenerative Disc Disease-Topic Overview - WebMD www.m.webmd.com/back-pain/tc/degenerative-disc-disease-topic
8 Adiposis dolorosa - Wikipedia, the free encyclopedia https://en.wikipedia.org/wiki/Adiposis_dolorosa
9 Review of Dercum's disease and proposal of diagnostic ... www.ncbi.nlm.nih.gov › NCBI › Literature › PubMed Central (PMC)
10 Adiposis dolorosa - Genetics Home Reference ghr.nlm.nih.gov/condition/adiposis-dolorosa
11 FDRS Dercum's Description - Fat Disorders Research Society www.fatdisorders.org/fat-disorders/dercums-description
12 Dercum's Disease - WebMD www.webmd.com/a-to-z-guides/dercum-disease
13 Dercum's Disease, a Painful Mystery - Global Genes Project https://globalgenes.org/raredaily/dercums-disease-a-painful-mystery/
14 Dercum's Disease - XXXXXXX L. Herbst, Ph.D., M.D. - Lipomadoc www.lipomadoc.org/dercums-disease.html
Dr Herbst came to Melbourne Australia where I saw her for a talk in Oct 2015, for $200 donation. She suggested I go to Germany for treatment if I am struggling to cope; so I sent her my bank account picture - she is a very genuine person but if I hit pain I do not communicate well. Otherwise I am a very competent psychotherapeutic lay person as a 'long retired pastor,' smarter than all but one of the therapists who has worked with XXXXXXX but who was so controlled by that therapist's facility that the therapist was not allowed to work with XXXXXXX She wanted to bring me in on all sessions possible to stop XXXXXXX from dissociating so heavily.
I need to keep grounded for a week longer - this last week we had a son write off a car innocently in very high, wet, country with windy roads - I did not want him to replace me but he and his sister (my other daughter) knew that I could not cope. These costs more than double the worth of the second hand vehicle by the time we go through the road worthiness certification processes - and small families have little time for big families much like some rich avoid the poor in our experience. Fortunately our children have all chosen to follow their values. I am honest about my financial jealousy as it is such a struggle and to watch my wife do so much hurts. But I admire the doctors who serve in this humble forum that is of such hight quality. I can show medical reports that are full of contradictions and lack any humanity or display of care of persons. However, I find this more true of pastors than doctors today, and have to remind myself I am accountable for, not only my tongue, but my thoughts..
I am off to bed - ready ages ago, but when 24 hr of pain meds kick in they disrupt sleep too. I have used capsaicin cream for years on on and off - to my amusement as the external burning is good distraction from the internal pains, but does not change anything for me. As a young man told I was too fit to have a health problem I rubbed on what I could buy at the time, Finalgon, put on warm football socks then warm track suit. My mates would complain about pain before they started running. I learned to zip my mouth - once said to doctor excising my lipomas when he said that I should tell him when the anaesthesia began to wear off (a difficult one, the only one that regrew that he worked on that I was aware of). I said I would begin to laugh when the anaesthesia wore off, which is what happened.
I had a hospital referral to a specialist that I attended today - the specialist said that the referral was invalid, that the hospital doctor likely knew that was so, as it lacked any medical history and merely asked me to differentiate my sciatic pains from my neruopathic pain of Dercum's Disease. By the time I tided my paper work and calendar the receptionist had hard filed that dysfunctional referral and had two other clients, so asked me to do a favour and get my own copy of it from the original doctor herself. I stopped on the way home to get it only to find that she no longer works 'there.'
I am going to my local GP to start the process again wiht his approximate history of my case and medications - he is very imprecise in his notations, but it will get me in so that I can 'cover my back' in relation to a rapid need for further surgery that my 88 yr old mothers who had a temporary heart balloon inserted this week, and has tongue and lung cancer, said that I was in far worse condition than her and should not even hold a driving license -the reason I only go out after 10-10.30 AM, then collapse on bed when I get home after walking only 75-150 meters.
I am still interested in going to overseas hospitals as I followed Drs XXXXXXX XXXXXXX and Schallenberger who wri(o)te 'Second Opinion.' I know it is desperate, but the 1/2 price 2 sessions of Prolozone offered me by Dr XXXXXXX Dulitszky in Sydney were remarkable - if he only trusted that i do left-right brain exercises and accepted that my then shocking dementia was induced by Lyrica, instead of preaching 'new age healing' which I use and accept (bounce on edge of bed to stimulate lymphatic while counting to 100 out loud and moving hands and arms in various clockwise or counter-clockwise fashion; EFT, TFT, EMDR, Mindfulness, etc). But the advancement of my disease got ahead of me and I care for XXXXXXX (Amy's Story 60 Minutes au) which set us up for fraudulent psychological services... to invert our mortgage.
My understanding of Ozone is that once it is extracted and combined with Ozone it immediately forms a metabolite which has immense healing properties. I am using Bromelian and Quercertain for a similar reason: to heal leaking gut and blood vessels to prevent them leaking the toxins into adipose tissue.
My goal has to be to return to full time work in 2017 now that I have an idea of what I am up against.
I am happy to pay more for this service with you because I do not get to talk to any doctor face to face at this level. All I can do is print off a discussion and delete all details and give it to a doctor, but I see no value in doing so, as the most reading they do is gloss over what they tell me I cannot access, then report to me what I already know - I honestly do not tell them what I have done or how I do it: 1 Adiposis dolorosa - Wikipedia, the free encyclopedia https://en.wikipedia.org/wiki/Adiposis_dolorosa
2 Dercum's Disease - National Organization for Rare Disorders
3 Learning About Dercum Disease https://www.genome.gov/0000
4 Home - NORD (National Organization for Rare Disorders)
5 Adiposis Dolorosa: Background, Pathophysiology ... emedicine.medscape.com/article/0000-overview
6 Adiposis dolorosa - Wikipedia, the free encyclopedia en.wikipedia.org/wiki/Adiposis_dolorosa
7 Degenerative Disc Disease-Topic Overview - WebMD www.m.webmd.com/back-pain/tc/degenerative-disc-disease-topic
8 Adiposis dolorosa - Wikipedia, the free encyclopedia https://en.wikipedia.org/wiki/Adiposis_dolorosa
9 Review of Dercum's disease and proposal of diagnostic ... www.ncbi.nlm.nih.gov › NCBI › Literature › PubMed Central (PMC)
10 Adiposis dolorosa - Genetics Home Reference ghr.nlm.nih.gov/condition/adiposis-dolorosa
11 FDRS Dercum's Description - Fat Disorders Research Society www.fatdisorders.org/fat-disorders/dercums-description
12 Dercum's Disease - WebMD www.webmd.com/a-to-z-guides/dercum-disease
13 Dercum's Disease, a Painful Mystery - Global Genes Project https://globalgenes.org/raredaily/dercums-disease-a-painful-mystery/
14 Dercum's Disease - XXXXXXX L. Herbst, Ph.D., M.D. - Lipomadoc www.lipomadoc.org/dercums-disease.html
Dr Herbst came to Melbourne Australia where I saw her for a talk in Oct 2015, for $200 donation. She suggested I go to Germany for treatment if I am struggling to cope; so I sent her my bank account picture - she is a very genuine person but if I hit pain I do not communicate well. Otherwise I am a very competent psychotherapeutic lay person as a 'long retired pastor,' smarter than all but one of the therapists who has worked with XXXXXXX but who was so controlled by that therapist's facility that the therapist was not allowed to work with XXXXXXX She wanted to bring me in on all sessions possible to stop XXXXXXX from dissociating so heavily.
I need to keep grounded for a week longer - this last week we had a son write off a car innocently in very high, wet, country with windy roads - I did not want him to replace me but he and his sister (my other daughter) knew that I could not cope. These costs more than double the worth of the second hand vehicle by the time we go through the road worthiness certification processes - and small families have little time for big families much like some rich avoid the poor in our experience. Fortunately our children have all chosen to follow their values. I am honest about my financial jealousy as it is such a struggle and to watch my wife do so much hurts. But I admire the doctors who serve in this humble forum that is of such hight quality. I can show medical reports that are full of contradictions and lack any humanity or display of care of persons. However, I find this more true of pastors than doctors today, and have to remind myself I am accountable for, not only my tongue, but my thoughts..
Brief Answer:
Generally there is an order of treatments tried.
Detailed Answer:
we start at the least, safest, and cheapest.
so... the few medications mentioned rather than a ton of interventions would generally be the first thing done. This would be about the cost of this intervention and not a reason for a mortgage.
Generally there is an order of treatments tried.
Detailed Answer:
we start at the least, safest, and cheapest.
so... the few medications mentioned rather than a ton of interventions would generally be the first thing done. This would be about the cost of this intervention and not a reason for a mortgage.
Above answer was peer-reviewed by :
Dr. Chakravarthy Mazumdar
I fear that I will be waisting your time. My hope is IV Ozone or Lidocaine based on my experience in Australia as I will describe in part:
Lidocaine works by one particular way of damping nerves. Many many cheap, safe, pills do the same. Amitryptiline, anti-epileptics (valproate, or dilantin would be a good start), anti-arrhythmia heart pills (quinine or encanide are more specific for this perhaps, amiodarone hits a very broad range of nerve functions) are SOME but not ALL of the drugs LIKELY to act in a lidocaine manner.
I have been given many medications over many years and used them prior to having a diagnosis. They started with the use of Zoloft in the early stages of my illness prior to diagnosis with minimal effect on pain, impotence and putrid sweat. From there came Prozac and its cousins along with Endep/Amitriptyline, Celebrex/celecoxib, Clomipramine because its older relative is unavailable in Australia (that was a comedy display by our hospital doctors), to Lyrica, Keppra, Palexia and Pristiq. In all of this I was either writhing in pain short of suicidal ideations or regarded by the Pain Clinic as uncooperative despite that I gave tablets 3-6 weeks of trials. And Sifrol. All of different sizes and combinations
I am on Oxynorm, Oxycontin and Hypnodorm, which not only enable me to read and write, socialise and get out of the home, but engage in the review of medical, theological and philosophical discussions as well as do ‘casual/unemployed and unrecognised’ psychotherapy.’ Those who I get to work with or phone me are able to be discharged next to overnight from lock up units because they are listened to and come to rapid insight of their circumstances such that they receive commendations from nurses and doctors.
Yet the Pain Clinic regards me as obstinate and non-compliant because I do not pile on one medication after the other above. They choose to over look that the moment I came off Lyric and Keppra (2 separate occasions) I came out of early onset medical dementia, heavy oedema with extreme pitting and coldness of extremities, not able to distinguish pain from cold, and in which I was totally reliant on my wife to balance me when walking out of the home (inside we have rails - I had gone from very heavy work felling and cutting trees, moving tons of soil, etc, exercise, weight lifting, a 6 pack - all despite Lumbar Stenosis.
Because of you I am now combining a rub on of coconut oil with the use of yellow light and another electronic device. Eventually, soon, I will add a third device which I believe will help with the break down of fats by the increase of blood supply and the opening of blood vessels and tissues to enable me to detox. I am also tried the use of a powerhead vacuum cleaner…. and will combine these with MLD and lymphatic stimulation, and dry skin rubbing, along with the pursuit of an invention.
I pointed all of these things out to doctors and they would not flinch. Instead I had a letter thrown in my face. I also was being given one medicine on the other, and simply barked at when I remarked that I feel helpless what to do, ‘That just goes to show how difficult it is to treat this illness. The Pain Clinic does not demonstrate a will to accept Dercum’s Disease,and is ignoring the side effects of Lyrica and Keppra to date, and wants to blame my condition on the use of narcotics.
Today I had a referral to a private specialist by a hospital doctor which I finally attended yesterday, but I was told on arrival that the referral was so poorly written that it was invalid and I should ask my local GP to do it this time; then 2 other clients walked into the specialist office and by the time I reorganized myself to go and thought to ask for a copy of the referral. However, the secretary said she had already filed it and told me to ask the doctor who wrote it when I saw her at the hospital for another one. Actually, this is a very complicated story (my medical transport had been cancelled because of a break down and I do not get to the Hospital next till March 31st, but as the referring doctor not only worked there but had written the referral on another Hospital Letter head in conjunction with the Qld Institute of Dermatology, I thought I would ask them for a copy - it took 5 minutes of behind the door discussion for the receptionist to emerge and say since that doctor no longer worked there, meaning she was not there to sign the copy held in hand by the receptionist she could not give it to me. In fact, by this time they probably had a fax from the specialist about the matter.
I could have caused a fuss in the surgery, but I want that specialist to take a good look at my back - I know I need more surgery or advice on how to avoid it, but I do not know who to trust anymore. 6-8 doctors have told me that I did not have key hole surgery as stated on the hospital discharge, as if I did not know, and one out and out called it a botch job.
I find this abhorrent. I have to dope up on questionable products to walk and do a couple of house jobs, meaning Hemp Oil. Now I have to weigh up how I prioritize referrals - factually I need my back investigated asap, as much as I need treatment for Dercum's DiseaseDD is the big picture and the problem with my thighs is not responding to the narcotics and hemp oil or sub-lingual Brauer Arnicaeze the way my chest is responding to these. It only takes a few minutes on my feet for my back to aggravate my DD.
I am determined to return to work by 2017 in a denominational called position or independent work. I am determined to keep my spirits up as I have a number of theological passions to posit thesis for students to consider for BTh or Masters of Theology. I also have a volunteer role in support of an inventor (I approached him to ask help to adapt ultrasound technology for Dercum’s Disease -I note that the Chinese export of their junk market has gone up $400% in price- I am helping the inventor chase an
image intensifier preferably sensitive to violet and ultraviolet light. They do exist. I also need a unit with removable optics, i.e. the objective at the front needs to be replaced with pinhole optics and the eye piece to make photography possible. An alternative choice would be to purchase the innards and build my own 1KV power supply and case.
The difference between a proper image intensifier or Night Vision Device (NVD) is it green screen at the viewing end, as compared to a thermal Imager that records in colours such as blue for cold and red for heat.
Second Generation NVDs use a Caesium screen (radioactive) for higher amplifications.
XXXXXXX Laroo
http://www.qt.com.au/videos/ipswichs-einstein/35007/
Thank you for mentioning Quinine to me. I had confused it with Quercitin which I am using, but that is ok as concept is to prepare leaking blood vessels to prevent buildup of toxins in adipose formations. I am researching it next.
Lidocaine works by one particular way of damping nerves. Many many cheap, safe, pills do the same. Amitryptiline, anti-epileptics (valproate, or dilantin would be a good start), anti-arrhythmia heart pills (quinine or encanide are more specific for this perhaps, amiodarone hits a very broad range of nerve functions) are SOME but not ALL of the drugs LIKELY to act in a lidocaine manner.
I have been given many medications over many years and used them prior to having a diagnosis. They started with the use of Zoloft in the early stages of my illness prior to diagnosis with minimal effect on pain, impotence and putrid sweat. From there came Prozac and its cousins along with Endep/Amitriptyline, Celebrex/celecoxib, Clomipramine because its older relative is unavailable in Australia (that was a comedy display by our hospital doctors), to Lyrica, Keppra, Palexia and Pristiq. In all of this I was either writhing in pain short of suicidal ideations or regarded by the Pain Clinic as uncooperative despite that I gave tablets 3-6 weeks of trials. And Sifrol. All of different sizes and combinations
I am on Oxynorm, Oxycontin and Hypnodorm, which not only enable me to read and write, socialise and get out of the home, but engage in the review of medical, theological and philosophical discussions as well as do ‘casual/unemployed and unrecognised’ psychotherapy.’ Those who I get to work with or phone me are able to be discharged next to overnight from lock up units because they are listened to and come to rapid insight of their circumstances such that they receive commendations from nurses and doctors.
Yet the Pain Clinic regards me as obstinate and non-compliant because I do not pile on one medication after the other above. They choose to over look that the moment I came off Lyric and Keppra (2 separate occasions) I came out of early onset medical dementia, heavy oedema with extreme pitting and coldness of extremities, not able to distinguish pain from cold, and in which I was totally reliant on my wife to balance me when walking out of the home (inside we have rails - I had gone from very heavy work felling and cutting trees, moving tons of soil, etc, exercise, weight lifting, a 6 pack - all despite Lumbar Stenosis.
Because of you I am now combining a rub on of coconut oil with the use of yellow light and another electronic device. Eventually, soon, I will add a third device which I believe will help with the break down of fats by the increase of blood supply and the opening of blood vessels and tissues to enable me to detox. I am also tried the use of a powerhead vacuum cleaner…. and will combine these with MLD and lymphatic stimulation, and dry skin rubbing, along with the pursuit of an invention.
I pointed all of these things out to doctors and they would not flinch. Instead I had a letter thrown in my face. I also was being given one medicine on the other, and simply barked at when I remarked that I feel helpless what to do, ‘That just goes to show how difficult it is to treat this illness. The Pain Clinic does not demonstrate a will to accept Dercum’s Disease,and is ignoring the side effects of Lyrica and Keppra to date, and wants to blame my condition on the use of narcotics.
Today I had a referral to a private specialist by a hospital doctor which I finally attended yesterday, but I was told on arrival that the referral was so poorly written that it was invalid and I should ask my local GP to do it this time; then 2 other clients walked into the specialist office and by the time I reorganized myself to go and thought to ask for a copy of the referral. However, the secretary said she had already filed it and told me to ask the doctor who wrote it when I saw her at the hospital for another one. Actually, this is a very complicated story (my medical transport had been cancelled because of a break down and I do not get to the Hospital next till March 31st, but as the referring doctor not only worked there but had written the referral on another Hospital Letter head in conjunction with the Qld Institute of Dermatology, I thought I would ask them for a copy - it took 5 minutes of behind the door discussion for the receptionist to emerge and say since that doctor no longer worked there, meaning she was not there to sign the copy held in hand by the receptionist she could not give it to me. In fact, by this time they probably had a fax from the specialist about the matter.
I could have caused a fuss in the surgery, but I want that specialist to take a good look at my back - I know I need more surgery or advice on how to avoid it, but I do not know who to trust anymore. 6-8 doctors have told me that I did not have key hole surgery as stated on the hospital discharge, as if I did not know, and one out and out called it a botch job.
I find this abhorrent. I have to dope up on questionable products to walk and do a couple of house jobs, meaning Hemp Oil. Now I have to weigh up how I prioritize referrals - factually I need my back investigated asap, as much as I need treatment for Dercum's DiseaseDD is the big picture and the problem with my thighs is not responding to the narcotics and hemp oil or sub-lingual Brauer Arnicaeze the way my chest is responding to these. It only takes a few minutes on my feet for my back to aggravate my DD.
I am determined to return to work by 2017 in a denominational called position or independent work. I am determined to keep my spirits up as I have a number of theological passions to posit thesis for students to consider for BTh or Masters of Theology. I also have a volunteer role in support of an inventor (I approached him to ask help to adapt ultrasound technology for Dercum’s Disease -I note that the Chinese export of their junk market has gone up $400% in price- I am helping the inventor chase an
image intensifier preferably sensitive to violet and ultraviolet light. They do exist. I also need a unit with removable optics, i.e. the objective at the front needs to be replaced with pinhole optics and the eye piece to make photography possible. An alternative choice would be to purchase the innards and build my own 1KV power supply and case.
The difference between a proper image intensifier or Night Vision Device (NVD) is it green screen at the viewing end, as compared to a thermal Imager that records in colours such as blue for cold and red for heat.
Second Generation NVDs use a Caesium screen (radioactive) for higher amplifications.
XXXXXXX Laroo
http://www.qt.com.au/videos/ipswichs-einstein/35007/
Thank you for mentioning Quinine to me. I had confused it with Quercitin which I am using, but that is ok as concept is to prepare leaking blood vessels to prevent buildup of toxins in adipose formations. I am researching it next.
Brief Answer:
you are very welcome
Detailed Answer:
It seems odd that you are mentioning the huge amount of narcotics only now. Of course most/all people with your condition are on them, and the pain is not very responsive to them, so the doses are typically above the average. But then, mostly there would be use of question marks as previously mentioned. There are many lidocaine like drugs, and I see you copied that part and are looking into them. There are several different ion channels and lidocaine blocks several. The patch probably cannot hit many different types. If the lidocaine patch works all over then it cannot be more than the regular sodium channels because the lidocaine effect would be quite small outside of its immediate area. Amiodarone would hit a wide variety of receptors. It takes a couple weeks to fully kick in.
you are very welcome
Detailed Answer:
It seems odd that you are mentioning the huge amount of narcotics only now. Of course most/all people with your condition are on them, and the pain is not very responsive to them, so the doses are typically above the average. But then, mostly there would be use of question marks as previously mentioned. There are many lidocaine like drugs, and I see you copied that part and are looking into them. There are several different ion channels and lidocaine blocks several. The patch probably cannot hit many different types. If the lidocaine patch works all over then it cannot be more than the regular sodium channels because the lidocaine effect would be quite small outside of its immediate area. Amiodarone would hit a wide variety of receptors. It takes a couple weeks to fully kick in.
Above answer was peer-reviewed by :
Dr. Chakravarthy Mazumdar
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