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Suggest Treatment For SLE In A 12 Year Old Child

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Posted on Mon, 13 Jul 2015
Question: I am XXXX I have a son of 12 years. 2 years back he was diagnosed with SLE. He was put under Omnacrtil 10 mg per day. In last two Years this dosage was stepped down and finally came to omnacrtil 2.5 mg twice a week. Recently he again started showing symptoms as a results our doctor asked us to increase the dose upto 20mg and then step down by 5mg every week. when the dosage came to 5 mg he again showed mild symptoms.
His specific symptoms are
mild fever, ++ protein in urine.

no skin rash or anything else.

he is also given HCQS 200 I do not know which way is benefiting.

Is there a way to come out of this?
doctor
Answered by Dr. Naval Mendiratta (38 minutes later)
Brief Answer:
Management of SLE

Detailed Answer:
Good evening XXXX

Thank you for writing on health care magic

Well, Lupus in a young male is very unusual. I have read the other questions also you had asked previously and I feel we need a step wise approach here or the disease is going to keep progressing.

1. At times you need a low dose of steroids in SLE and it is never easy to come off it. IF the requirement for Steroids is continuously high, it is better to add a Steroid Sparing drug like Azathioprine or MMF. Considering his growing age, it is always better to keep the steroids on lowest dose

2. ++ protein in urine is not a good indication. I am not sure if you have got 24 hour urine protein done recently. If you haven't, you should repeat it soon, so we know the exact amount of leakage going on. If the leakage is high, I would suggest you consult your rheumatologist and he may need a kidney Biopsy done to look if lupus is involving the kidneys or not. This is a standard approach practiced world wide, but yes kidney involvement asks for an early intervention. There are good drugs available for it.

3. I feel he needs a step up of the treatment. What we need to understand is we need to hit the disease hard cause the maximum damage it can cause is in the first 3 years of it s starting. Better we control it now, better the results are.

4. If you could attach the recent results and tell me your location I can guide you further as well. Do let me know which rheumatologist is looking after him

Await your reply

REgards
Dr Naval
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Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
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Answered by
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Dr. Naval Mendiratta

Rheumatologist

Practicing since :2007

Answered : 754 Questions

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Suggest Treatment For SLE In A 12 Year Old Child

Brief Answer: Management of SLE Detailed Answer: Good evening XXXX Thank you for writing on health care magic Well, Lupus in a young male is very unusual. I have read the other questions also you had asked previously and I feel we need a step wise approach here or the disease is going to keep progressing. 1. At times you need a low dose of steroids in SLE and it is never easy to come off it. IF the requirement for Steroids is continuously high, it is better to add a Steroid Sparing drug like Azathioprine or MMF. Considering his growing age, it is always better to keep the steroids on lowest dose 2. ++ protein in urine is not a good indication. I am not sure if you have got 24 hour urine protein done recently. If you haven't, you should repeat it soon, so we know the exact amount of leakage going on. If the leakage is high, I would suggest you consult your rheumatologist and he may need a kidney Biopsy done to look if lupus is involving the kidneys or not. This is a standard approach practiced world wide, but yes kidney involvement asks for an early intervention. There are good drugs available for it. 3. I feel he needs a step up of the treatment. What we need to understand is we need to hit the disease hard cause the maximum damage it can cause is in the first 3 years of it s starting. Better we control it now, better the results are. 4. If you could attach the recent results and tell me your location I can guide you further as well. Do let me know which rheumatologist is looking after him Await your reply REgards Dr Naval