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Suggest Treatment For Pain Due To Interstitial Cystitis

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Posted on Mon, 8 Dec 2014
Question: Hi! I have been suffereing with interstatial cycstitis for many years now. I have had every treatment they can throw at me and am willing to try anything. The only time that I get real relief is from oxycocone. Every single month it is a huge deal to get anything for pain relief. I have to fight for every little bit. I don't think its fair and sometimes I will go a few months without anything and suffer terribly just because I can't take it anymore. What can I do? What should I do? I can't do this for the rest of my life. Shouldn't I be seeing a pain management specialist or something? It's not like it's going to go away. Having chronic kidney stones causes alot of problems too. Advice please!!
doctor
Answered by Dr. Dr. Matt Wachsman (29 minutes later)
Brief Answer:
Actually, yes pain mgt BUT

Detailed Answer:
you want one that is willing to try treatments that are promising but not FDA approved.
Spinal injections of steroids are not likely to help. ONLY have it done if you get an agreement (perhaps in writing) that they are willing to continue to see you when they don't work after trying it TWICE not FIVE TIMES.
Much more compelling to try are:
FDA approved ELMYRON
http://www.orthoelmiron.com/
Viagra ?!?!
http://www.ncbi.nlm.nih.gov/pubmed/0000
yeah, looks like it works... it's going generic and headed to 10 bucks a day to try it out
BOTOX
http://www.ncbi.nlm.nih.gov/pubmed/0000
http://www.ncbi.nlm.nih.gov/pubmed/0000
Electrical stim.... basically TENS for the bladder
http://www.ncbi.nlm.nih.gov/pubmed/0000
and a variety of medications put directly into the bladder.

This is a fairly complete listing of the NON-NARCOTIC alterntives that actually help fix the entire problem in IC. These treatments, although SAFE and looking pretty darn effective, are not generally available. Calling ahead to urologists and pain managment people to see what they have available. Centers connected with Universities are generally a bit more open to newer therapies.
Note: For more detailed guidance, please consult an Internal Medicine Specialist, with your latest reports. Click here..

Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
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Answered by
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Dr. Dr. Matt Wachsman

Addiction Medicine Specialist

Practicing since :1985

Answered : 4214 Questions

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Suggest Treatment For Pain Due To Interstitial Cystitis

Brief Answer: Actually, yes pain mgt BUT Detailed Answer: you want one that is willing to try treatments that are promising but not FDA approved. Spinal injections of steroids are not likely to help. ONLY have it done if you get an agreement (perhaps in writing) that they are willing to continue to see you when they don't work after trying it TWICE not FIVE TIMES. Much more compelling to try are: FDA approved ELMYRON http://www.orthoelmiron.com/ Viagra ?!?! http://www.ncbi.nlm.nih.gov/pubmed/0000 yeah, looks like it works... it's going generic and headed to 10 bucks a day to try it out BOTOX http://www.ncbi.nlm.nih.gov/pubmed/0000 http://www.ncbi.nlm.nih.gov/pubmed/0000 Electrical stim.... basically TENS for the bladder http://www.ncbi.nlm.nih.gov/pubmed/0000 and a variety of medications put directly into the bladder. This is a fairly complete listing of the NON-NARCOTIC alterntives that actually help fix the entire problem in IC. These treatments, although SAFE and looking pretty darn effective, are not generally available. Calling ahead to urologists and pain managment people to see what they have available. Centers connected with Universities are generally a bit more open to newer therapies.