Question: Dr. Naval Mendiratta,
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Since I moved house and I am now seeing a new GP, my new Doctor's are taken this case very serious. A few days ago I was diagnosed with pleurisy even though I didn't have an x-ray. My blood pressure was up to 149/89 also I weird rash appeared on my torso plus my mouth and tightened, both side of lips were sore to open mouth wide, ( see photo).It's not just the sun that seems to have an affect but the cold, when there's a sudden change in temperature to now being cold, my toes and fingers go very cold to touch, like I've had them in ice. Then that joint pain and tingling sensation. The pain in my nails is very sore as if someone was putting a needle through them. I get organ pain as you know. I find it hard to walk, like the bottom of my shins, or the top of my feet is restricted from movement. My GP had asked me if I have ever had problems swollen and I said YES, I have to drink water to help me get my food down as it gets stuck in my esophagus. I've sent you more photos, please take a look! My GP is send me to see a rheumatologist a.s.a.p.
GP also took note that I had both toe nails off at the same time which was due to ingrown toenails on the big toe. He went through my family history and seemed to take interest in my dad's side of autoimmune diseases, (dad has pernicious anemia and his mum who died of scleroderma and his aunty had rheumatoid arthritis). I was in touch with a doctor previous to my last visit and is going to help me arrange to do a special urine test for Porphyria! What ever disease this is I am getting sicker and believe it will show it's true colours. The disease doesn't seem to leave anything out even my urethra gets affected, like it's got norrower and my flow of urine isn't how it should be! Please look at photos and tell me what you think?
Forgot to mention, on the photos that I have sent to you please look and zoom in on rash on arm, so should see wee white spots and also the photo of my scalp there is also a white spot. My GP took special interest in those photos. That's what I get all over scalp and a white chalk like substance comes out when I pick at them and that's why one of the photo's on scalp is abit bloody. The rash on arm was very itchy and appeared like that after 30 seconds of scratching! Hope this information helps?
Sorry Dr Naval but I didn't mention that, two GPs think it's scleroderma this is the first time anyone has mentioned this , please could I have your thoughts on this. I know that I haven't shown you the photos before of rash on arm and the scalp. I did mention that the GP took notice of my ingrown toenail that had been removed at the same time and said this is a common XXXXXXX of scleroderma, is this true? Before I had seen this Doctor, another Doctor was going to get things ready to test me for Porphyria and said it's best to do the test during flair and no light is to touch the urine test!! So glad I am getting help now! Thanks for your expertise! Any other advice would be much appreciated!

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