Question: I was dx with atypical
mycobacterial infection. Final results aren't in but it seems to be MAC. Last December I developed a sore throat, achy, no fever, thyroiditis. A strange deep croup like cough developed. I saw an ENT who said I had larygopharyngeal reflux and to take PPI's and nasal spray. Also referred to
Endocrinologist for throid. By the time I saw him, thyroid pain gone but cyst and multinodular nodes. Follow up was recommended. For a year I had on and off achiness, cough getting better. This past XXXXXXX July I developed
tooth infection, took cipro 3 weeks. Cough left, achiness left. Tooth pulled, went off antibiotics and cough and tiredness returned. Blood cultures showed no infection. Slightly elevated RBC,HCT,MPV. EOS though went from .2 in 1-13-13 to 5.0 12-13 (when this occurred) to 8.0 9-4-14. Referred to allergist who ordered sputum tests which brought dx above. Infectious disease dr gave me Zithromax and ethambutol. Said he could treat with one antibiotic but wanted to knock it out faster with 2. Will do so for 2 months - he said I was a 1 out of 1-4 on
sputum culture, tho something was still 'cooking'. Said OK to start on 1 for week and add the other. So Sat I started Zithromax (generic). I noticed a slight itching in ears, but told myself to ignore. 2 hrs later, diarrhea for 3 hrs with strange rumbling in stomach. Then I was fine, felt better, could eat, no more diarrhea. Being an 'allergic' person, I wonder if this is allergy to Zithromax. Was afraid to take next dose (due at 2 PM yesterday). It's 9:45 AM now in Florida. I'm scared. Ethambutol can cause blindness, 50%. My allergist Ofc just called and said they are adding Zithromax to med I had rxn to. Now I'm to call ID dr to ask for different antibiotic. Also my cat scan showed no evidence of consolidation, nodule,
pneumothorax or effusion. Mild Biapical scarring. I have mild asthma (used to be worse) and a bout of pneumonia in 2000. Taking antibiotics for a year or more is scary. I don't feel bad, started coughing up sputum from lungs two weeks ago after neuromuscular therapist began knocking on ribs and lungs. He's the one who said go back to dr that started all this. Sorry for long msg. I think I may have gotten this last Sept after eating a takeout order from health food store, fish, strange greens, next morning severe all day diarrhea with rash that's been there since then - week later - felt
thyroid cyst - then abt month later all the above happened (
incubation period). Any better treatment for this? Should I be scared? I am 73, thought 'healthy' tho Vit D levels were low, lots of other nutrients borderline thru spectra cell analysis. I know I'm in XXXXXXX category but do want to return to health. Again, I know lots of info but could all be connected? Thank you for any help !! PS: please be open to nutritional support such as vitamin drips or anything new on horizon. Thanks