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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Any Doctor To Treat Pseudoxanthoma Elasticum?

Hi, Iam a patient who has PXE, that is Psuedoxanthomaelasticum and would like to know if there are any doctors who are aware of this. I am trying to find a doctor, who would have more knowledge about this diorder. your help would be greatly appreciated.
Tue, 18 Mar 2014
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Ophthalmologist,  's  Response
Treatment depends on the organ system involved. You should be followed by a dermatologist (for the skin lesions), ophthalmologist (for evaluation for angiod streaks and risk for choroidal neovascular membrane), gastroenterologist (for assesment of GI bleeding), and cardiologist (coranary artery disease risk). I know it's a lot of doctors, but it is important for you to be seen by each of these specialists, even if asymptomatic.
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Any Doctor To Treat Pseudoxanthoma Elasticum?

Treatment depends on the organ system involved. You should be followed by a dermatologist (for the skin lesions), ophthalmologist (for evaluation for angiod streaks and risk for choroidal neovascular membrane), gastroenterologist (for assesment of GI bleeding), and cardiologist (coranary artery disease risk). I know it s a lot of doctors, but it is important for you to be seen by each of these specialists, even if asymptomatic.