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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Hello, I'm Christian! 15 Years Old Male, Filipino/pacific Islander Descent.

Hello, I'm Christian! 15 years old male, Filipino/pacific islander descent. I've currently been to five different hospitals and the diagnoses have been inconclusive, so I have been asking around to get different opinions. In the beginning of August 2015, I fell and injured my ankle in a mixed martial arts camp. Two weeks later I started experiencing what appeared to be experiencing what would look like migraines. Pain in the right-lateral occipital side, would last for 20 minutes, 3 times a day, everyday. Associated with photophobia. There was no evidence of head trauma from my initial fall, so the doctors didn’t think there was a direct correlation. These migraines continued to happen everyday (with excruciating pain, to the point where I would cry, clutch my head, and thrash to the ground), until the beginning of september, where I fell next to a bunsen burner in school, and they called an ambulance. At my local hospital (we’ll call it A, names will be omitted unless you find them relevant), they did a CT scan which came back negative for any abnormalities, as well as the standard Hematology Chemistry, Hba1c, etc.., which were all normal. I am a little overweight, but not considered Obese. I was then diagnosed with confusional migraine, and was prescribed Naproxen to give some pain relief. Weeks later, I visit my primary care physician, who scribes me for an inpatient Video EEG to rule out a seizure disorder. It came back negative. I was prescribed Amitriptyline and Sumatriptan both 10mg which would then be titrated up to 40mg each week as the maximum dosage. Because I was a tall guy, I was made aware that it would take sometime for the drugs to reach therapeutic level. This was called confusional migraine again. It wasn’t till a few days later when a new symptom popped up, uncontrollable jerking of the extremities along with eyes rolling back, foaming of the mouth, and incontinence. Classic signs of epilepsy, I know. Also transient global amnesia. A couple days later, my dad brings me to our speciality hospital B. I go in the ER, and have been told I was continuously seizing every few seconds or so. They didn’t feel the need to push Ativan (Lorazepam), but they did hook me up to an ECG and an additional Video EEG which both came back negative for abnormalities. They ran the standard blood tests and urine tox drug screen which came back negative for abnormalities. I was admitted, followed by Adolescent Medicine, and Psych. I was cleared by psych and was no longer in need of their services. I was discharged. So here I am early November, seizing several times an hour, inability to walk, every single day. It’s exhausting. My parents decided to take me out of state through the ER if a widely known hospital for an additional opinion. I was taken to trauma, and was pushed three times with Lorazepam which seemed to have no effect. I was admitted, given a third EEG, blood tests, urine screen, all normal. By exclusion, they came up with the diagnosis of Conversion Disorder, Psychogenic-NonEpileptic Seizures. They recommended intensive outpatient psychotherapy, and PT because of my inability to walk. I was not eligible to be admitted into a psych facility because the doctors there didn’t believe it was a Conversion Disorder, and I wasn’t homicidal or suicidal. I went on to see two psychotherapists, and three psychiatrists who have all referred us back to neurology because they feel it is not psychological. I failed to mention that in September, I had underwent an MRI and MRA without contrast. So now it’s december I just received my blood results back (I’ll attach the slip), and everything labeled under involuntary movements come back as normal. My current symptoms include *being told by my family members/experiencing: Uncontrollable jerking of the extremities, foaming at the mouth, eyes rolling back, indigestion, cheek biting, incontinence, transient amnesia, forgetting identity, peculiar judgment (I put a board game into my kitchen pantry), orthostatic hypotension. inability to see for a good 30 seconds, paresthesia in all extremities, scribbled handwriting at times, aphasia (intense stuttering), and constantly falling asleep (without feeling tired at all). I have been homeschooled for three months, and I’m so eager to return to my normal lifestyle. For the most part, I like to think I speak medicine. I want to be a pediatric oncologist. I tried to forget about a Subarachnoid Hemorrhage, Subdural Hematoma, Tumor, so I wouldn’t come across as a hypochondriac, and psych has clarified to me that I was lacking of a mental disorder. All the medical knowledge I have has been procured through my own separate research, and not once have I consulted WebMD on my own behalf. At this point I’m just desperate, I can’t stop seizing several times an hour, losing consciousness, I can’t see my girlfriend, hangout at the mall with my friends, or even complete an episode of TV because the plot won’t make sense in my head. Thank you so much for your time, and I appreciate any and all help/advice you can provide me with.
Sat, 19 Dec 2015
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Hello, I'm Christian! 15 Years Old Male, Filipino/pacific Islander Descent.