Hello!! My son was diagnosed with Infantile Spasms when he was 5 months old by Childrens Mercy Hospital in Kansas City, they put him on ACTH for 2 months, that completely stopped the seizures. Now he is one and they have came back in January when he was 10 months old but they aren't as bad but now I notice sometimes after he does 1 seizures (only a second long) his face starts to twitch but mostly his chin but the his head will start twitching and his eyes are off somewhere else kind of like he's in a zone. What could be going on? We have moved from Kansas to Texas so we no longer go to Kansas City so now we are waiting to see his primary doctor Tuesday so hopefully they will refer him to a specialist