Hi. I have CRPS 2 and had a stellar ganglion block actually pierce a ganglion which opened like a star all I remember was I saw a flash of bright light convulsed a little and was incoherent and was sobbing uncontrollably when I finally calmed down I knew it cured the absolute hell of ally dongs in my arms but stayed along entire spine I started having these electric shock fiery headaches beyond migraines pain is excruciating and this started in September at first it happened 3 x weekly and now it's been daily I have no sense of smell, my tastebuds are not working correctly as everything tastes horrible and not right my left ear keeps going on the verge of deafness will last an hour or a couple
of days both sides of my neck feel it's on fire and my eyes get Vertigo feel like I'm in tunnel vision and also get
blurry then extremely bad double vision wearing my glasses helps a bit and I get black outs I'm always dizzy and weak I've had an MRI done and my neurologist said nothing to worry about just a few spots with white matter around my brain . I am a well educated woman who knows something is up they didn't catch it I have talked to my pain management dr who agrees with me as my vocabulary is getting harder and more confusing to talk or to comprehend and I am constantly confused or forget and mispronounce words and it's getting worse day by day I am going to be able to see another neurologist for a second opinion but I feel it's always been linked to the CRPS as my insurance is WC so the won't authorize tests etc. I called the neurologist who had the MRI of my brain done as well as a 3 phase bone scans cat scans X-rays the whole lot of tests have been done my original injury site doesn't even hurt this bad as my CRPS still has pain in my left foot but I'm afraid it's gone systemic and I am at wits end What do you feel could this be part of CRPS or has CRPS opened the door for more autoimmune to enter I believe it's linked to that ganglion as my headaches have white flashes it's on fire it's excruciating feels like my head has a metal band and is trying to tighten harder and harder each passing day it gets worse Is there a correlation with this from the ganglion ? I am confused most of the time as I said and I feel even now as if I keep repeating it . What would your consult to me for this be -- mind you it's March it's been happening since October and most recently worsening over last 6 weeks daily