Hi,
The best treatment options for
congenital adrenal hyperplasia (CAH) depend on many factors including the type of CAH and the signs and symptoms present in each person. Many people with CAH require
steroids to replace the low hormones similar to what your daughter is being prescribed.
These medications will need to be taken daily throughout life or the symptoms of CAH may return. It is important that affected people on medications be closely followed by their health care provider because their dose may need to be adjusted at different times in life such as periods of high
stress or illness.
Eating salty foods or taking salt pills may also help salt-wasters retain salt. People who have classic CAH need to wear a medical alert identification bracelet or necklace. To alert medical professionals in case of an emergency, the bracelet or necklace should read: "
adrenal insufficiency, requires
hydrocortisone."
Adults or parents also need to learn how to give an injection of hydrocortisone if there is an emergency. Patients with classic CAH need to take medication daily for their entire lives. If a patient stops taking his or her medication, symptoms will return. Parents may also want to find a
psychologist, social worker, or other mental health professionals to support them in their decision making.
It is important to find an experienced mental health provider whose expertise includes working with children who have CAH and their special needs.
Hope I have answered your query. Let me know if I can assist you further.
Regards,
Dr. Prabhash Verma,
General & Family Physician