I Have Usher Syndrome, Could You Give Me Any Insight Or Something That May Help Me ?
I think that I have Usher Syndrome. Retinitis Pigmentosa has been confirmed and the ear doctor said that I was slowly losing my hearing although the two have yet to be officially linked. I believe I have type 3. I have balance problems which I believe is vertigo. I feel like I am in a dreamlike state a lot of times. It makes it hard feel like I am "with it" and to feel like i'm not being spacey. Could you give me any insight or something that may help me ?
welcome to healthcare magic
the syndrome is a recessive autosomal chromosal linked disease and manifested in childhood
please discuss your problems with your doctors and be guided by them for various methods to be adopted and be trained well in advance to face the difficult situation in time to come
hope you get all required guidance from your doctors
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I Have Usher Syndrome, Could You Give Me Any Insight Or Something That May Help Me ?
For the eye problem you can try Vit A therapy.For more details visit http://sites.google.com/site/eyediseases/Home/retinitis-pigmentosa