I have had migraines for approx. 40 years, I am also chronic anemic and get regular blood transfusions and iron infusions to keep my hemoglobin up. Lately, I have noticed a scary shortness of breath, like I cannot catch my breath. I try to exercise and stay in shape-I do NOT have high blood pressure and am not overweight. I am 5'7-135 lbs. I cannot work out due to the shortness of breath, but just had my blood checked and my hemo was at 8.7 approx. which is EXC for me, it usually goes down to about 5 or 6 after 3 months, My body does NOT retain Iron and nobody knows why-they have run every test but the iron just will not stay. One doc' gave me IV iron every other day for 30 days--and my iron was at ZERO after 60 days. He decided on a blood trans. like everyone else. I also have a heart murmur, but have had it since birth, but the last specialist said "it was loud"-whatever that means. Before I die, I would like to know what might be wrong with me--I have seen specialists all over the country and nobody has had an original idea in over 30 years. What do you think?? I also believe my migraines and when my hemo falls are relayed, as the lower my hemo gets the worse and more frequent my headaches are. I do take meds for migraines and still get blood and Iron. Any ideas??? Do yiu think it could now be my heart mermur?? I would just LOVE to start excrcising again--I used to work out at least 3-4 times weekly--I miss it.