I have neurofibromatosis . I have the fibromas all over my body. I have terrible back and neck pain with no surjuries. But have had lots of X-rays , mri's, and other tests done. I do have a few cysts non cancerous they say but have had not biopsys ...done on them . They haven't grown ...they say they are filled with fluid. My pain has gotten a lot worse....I am on pain med and muscle relaxe.....and this cream for my back they special mix...KETO 20%BACL02%CYCLO2%GABA6% I use on my back ......I know it is special mixed......how well doesn't mix and work for others ? It doesn't seem to last very long. Could it be possible that fibromas have increased in size and more in back . Do you know if these fibromas can grow right on my spine? WELL great to hear you got such a great early Xmas present !!!!! Best Xmas. Present ever ! Sorry to hear about aunt grace love and prayers for her and for all of you. Well heard they were doing surgury on Tuesday.....can't be there or I would Wendell is having a heart cath done on Tuesday I am going with him and mom and Becky his is
In Dayton. PLEASE KEEP US POSTED. THINKING OF ALL OF YOU LOVE YOU