Hi
Thanks for asking
Based on your query my opinion is
1. You have not given full details regarding the disease you were diagnosed as a child.
2. Based on the details of back ache and diagnosis of
reticulocyte endotheliosis it appears you would have had a solitary manifestation of
Langerhans cell disease.
3. This is not hereditary and is caused mostly due to a viral infection as neonate/ solvent exposure / childhood
vaccination.
4. Unifocal disease especially bone lesions carry a good prognosis besides spontaneous regression or disease progression to multiorgan involvement.
5.Thats probably what you were informed about your disease that there would be possible spontaneous regression/ burnt out.
6. In your daughter's case,
fever might just be of viral cause with backache/ generalized body aches.
7. If in doubt you can get counts checked apart from doing a
x ray for any lytic lesion to rule out reticulocyte endotheliosis.
Hope this helps
Regards