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Self Catheterizing, Constant Pain In Abdomen, Passing Stools After Eating, Mouth Ulcers, Itchy, Bleeding Anus. Diagnosed Vitamin D Deficiency And Fall In Phosphate And Magnesium Levels. Have Poland S Syndrome. Is This Crohn S Disease?
I have recently found out I have Polands syndrome. I have just spent 17 days in hospital because they have also been trying to find out what is wrong with my bladder and bowel. I cannot wee by myself and I am having to self catheterise. I have a constant pain in the lower right side of my abdomen. I have to go to the toilet about 30 minutes after eating anything. I have ulcers in my mouth. The entrance to my anus is constantly itchy and it bleeds alot. Whilst I was in hospital they discovered I have a vitamin D deficiency and my phosphate and magnesium levels fall requiring me to need infusions. I just feel generally very unwell. My father has crohn's disease. Could this be what I have been experiencing?
Mon, 17 Jun 2013
Hello,
I went through your complaints. You are having Polands syndrome. The other complaints may resemble as crohns disease/ulcerative colitis. You have a genetic factor for crohns disease.
The difference I have noticed are:
1) Crohn's disease induces - Anaemia because of vitamin B12 deficiency - which you have not mentioned. You say that you have overall deficiency of vitamin D, Phosphate and magnesium which may be due to diet deficiency.
2) The neurogenic Bladder
The other symptoms present in any condition leading to mal absorption.
Crohn's disease was considered as Auto immune disease - now considered as immune supreesion.
Have a complete examination and investigations of your digestive systems and arrive at a proper diagnosis. Meanwhile the cause aof neurogenic bladder has to be evaluated by a neuro surgeon/physician for involvement of Central and Peripheral nervous system.
Endoscopy, Tab Endoscopy, colonoscopy, CT and MRI are useful to arrive at a diagnosis.
Correct all vitamin deficiencies. With a dietitian plan your diet as you have mal absorption. Sometime gluten free diet may be useful.
Correct your immune system because gut plays a major role in immune system.
A serology for antibody may be useful.
My best wishes
I went through your complaints. You are having Polands syndrome. The other complaints may resemble as crohns disease/ulcerative colitis. You have a genetic factor for crohns disease.
The difference I have noticed are:
1) Crohn's disease induces - Anaemia because of vitamin B12 deficiency - which you have not mentioned. You say that you have overall deficiency of vitamin D, Phosphate and magnesium which may be due to diet deficiency.
2) The neurogenic Bladder
The other symptoms present in any condition leading to mal absorption.
Crohn's disease was considered as Auto immune disease - now considered as immune supreesion.
Have a complete examination and investigations of your digestive systems and arrive at a proper diagnosis. Meanwhile the cause aof neurogenic bladder has to be evaluated by a neuro surgeon/physician for involvement of Central and Peripheral nervous system.
Endoscopy, Tab Endoscopy, colonoscopy, CT and MRI are useful to arrive at a diagnosis.
Correct all vitamin deficiencies. With a dietitian plan your diet as you have mal absorption. Sometime gluten free diet may be useful.
Correct your immune system because gut plays a major role in immune system.
A serology for antibody may be useful.
My best wishes
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