I have had Crest Syndrome sence May, 12,of 20012, I got a a lot of drs, an its all coming at difence times, but its all over wheming. I am the one that has to be the one to explan the crest, I have had some of the crest most of my life, an didn t know it. I am scared of whats going to happen next, I have had 19 thoat suregys, in 2 years,