Hi,
It is true that as
Pineal gland diseases are not so common, it takes time to Diagnose. As a general rule, Doctors first have to think about more common diseases. Now as it is confirmed large
pineal cyst, we can correlate all her symptoms due to Pineal cysts, and its pressure on the surrounding structures of mid brain.
Cyst is actually a thin walled water fluid swelling. Good news is that, now a days there is very good prognosis of this disease. Most of these are benign, and can be removed surgically. You should expect your
Neurologist to do complete clinical examination for hearing, Vision, reflexes, Coordination tests, balance tests. He will do fine needle aspiration guided under
CT scan.
May be he will be able to drain all the fluid present in the cyst. This is important to relieve her of all her symptoms, and to diagnose the cause of it also. Hopefully, she will just be perfectly normal. She may have to undergo annual CT scan for follow up.
As she is already seeing
Endocrinologist, he or she would be able to evaluate the need for some
hormonal medicines. You must feel free to ask any concern you have regarding your Doctor's plan for management of this disease. I am hopeful, that soon your daughter will live a normal life. I have an experience of such case.
Hope I have answered your question. Let me know if I can assist you further.
Take care.
Regards,
Dr. Ivan R. Rommstein, General Surgeon