I am looking for a Dr. specializing in Familial Tumoral Calcinosis. My daughter is 5yrs old and has developed calcified masses at her incision sight from her liver transplant. She is also hyperphosphitamic. Genetic testing was inconclusive in getting a definitive diagnosis of HFTC. I would like to have her seen by someone who specializes in this. Transplant sent us to Endocrine then Nephrology and they have few answers.