What Do You Suggest For Lyme Disease With Pain In Spinal Cord?

my son was hospitialized back in september 2013 after 4 different visits to different er his symptoms were stiffness in his neck red rash that would just appear on the back of his neck at the top of his spinal cord about 3 inches all the way up into his hair line and disappear within 5 to 10 minutes. then in a few days he was vomiting with severe headache and severe pain in spinal cord. it got so bad he could not walk for 9 days he just crawled around on the floor while I was frantically trying to find help for him, trying to contact any nuerologist in two states that could see him because every Dr. said he had hyper reflexes and they were not consistent with his left leg from his right leg. finally an on call peds Dr. in Wilmington came into the er after the insistance of my sons regular Dr, spoke with him and they decided to do an mri about an hour after we were there. they came and got me @ 1:30am and showed me the results and said that he had a syrinx from his t3 to his t8 and that he needed a shunt to drain the fluid and that there was no one there qualified to do it and starting making arrangements for ambulance transfer to chapel Hill. we left later on that day when we hot there we were met by a surgeon who said the surgery would be done that night or early the next morning. by the next afternoon they sent a student in to tell us oh they are not going to do the surgery. well I don t have to tell you how upset I was and for the rest of my sons stay students were seen but not heard in the presence of my son. my son could still not walk without hel[p it was just too painful. I went round and round with the surgeons and i got a call from Loris Hospital two days later on a Sunday I believe and said he tested positive for Lyme disease. iI immediately went upstairs and gave the phone to staff dr to let them tell them the results of there findings. All the Dr.s were made aware and blew it off and stated that he did not have it and would not even give him a western blot test when I asked several Dr.s to do it. after a couple of days surgeons and Dr.s were set to send him home and slap a conversion disorder on him. the very same day he was set to come home apparently there was a conference at Chapel Hill for neurosurgeons from different parts of the country and the surgeons were talking about my sons case and one of the Dr.s from somewhere else said well we have some time can we take a look at your mri. they found a golf ball size mass at his 5th rib stated it was d/t fibrous dysplasa. they released him that same day after they confirmed the mass on or near his spine without any further tx. they wanted to send him home with just ibuprophen. i even let there shrink talk with us and my son. He told us and the Dr.s not to change his pain regimen which they were giving him oxycodone 5 mg usually averaging 2 a day and tylenol averaging 2 a day. he called the little pill a miracle pill because he made his pain go away. all there said is i do not see any evidence of conversion disorder. he gave us his card and said if we needed anything to call him. upon discharge the peds Dr. wrote orders for W/C and PT but never once said or wrote anything about my son having to see a Dr. for conversion disorder but wrote that as a dx on his papers. we were released. two days later I followed up with his Dr. in Loris and they went ahead and treated him as if he had lyme disease with oral abt. and sent us right next door too get a western blot test. within 5 weeks my son was able to walk again but says the pain never goes completely away. as of late he is complaining of headaches the pain in his back sometimes goes as high as an 8 or9 and he is crying. the Dr.s here will do nothing because they have jumped on the band wagon of conversion disorder. the Loris Dr.s called on a saturday january 25th and are stating that the rersults from the western blot have come back equvical. and now they have sent it vback to the lab to look at the bands they assured me when i spoke with them that the results would be back no more than a week. i still am waiting . i have called several times. i can not get past the front desk. also i found out about three weeks ago when he was with his physical therapist that his legs and left side have been having numbness and then really sharp pains. apparently my son did not know to tell us because when asked he said well it usually only lasts a few second no more than a minute . i have also reported this to the mds office no response from that either. the physical therapists do agree with this dx of conversion. they say that he is much stronger when he is laying down and weaker when he stands up. and other things that conversion does not make sense. he is 12 years old and in the 7th grade he has had the same school nurse all of this time and strongly agrees with myself and other medical folks that anyone who knows my son states that this is an absurd dx. I am at my wits end. if u have any advice any helpful suggestions please anybody that reads this I truly would welcome any help available. thank-you a helpless mother