Hi,
Thanks for writing in to us.
Sotos syndrome is a disorder characterized by a distinctive facial appearance, overgrowth in childhood, and learning disabilities or delayed development.
The MRI result saying dolichocephaly means that the head is longer than would be expected, relative to its width or a boat shaped head. Prominent extra axial spaces in brain mean that there is more widened convolutions on the surface of the brain.
As you are aware that children with Sotos syndrome often have intellectual impairment, and most also have behavioral problems. Frequent behavioral issues include attention deficit
hyperactivity disorder (ADHD), phobias, obsessions and compulsions, tantrums, and impulsive behaviors. Problems with speech and language are also common. Affected individuals often have problems with sound production,
stuttering, and a monotone voice.
There is also weak
muscle tone (hypotonia) may delay other aspects of early development, particularly motor skills such as sitting and crawling.
As you have mentioned that he has started crawling at 17 months of age, this is expected in children with Sotos syndrome.
Features to look for in children with Sotos syndrome can include an abnormal side-to-side curvature of the spine (
scoliosis), seizures, heart or kidney defects,
hearing loss, and problems with vision. Some infants with this disorder experience yellowing of the skin and whites of the eyes (jaundice) and poor feeding.
With a good
rehabilitation support most of the above deficiencies can be supported.