Thank you for asking Healthcare majic.
My name is Dr Ehsan Ullah &
I have gone through your query.
Primary immunodeficiency is a condition in which individuals are born missing some of the body's immune defences, which leaves them more susceptible to germs that can cause infections as compared to the general populations.
Regarding information for the
primary immune deficiency disorders, there is a list of such conditions which come under this category ... i just write here some names for your info like
-Common Variable Immune Deficiency,
-X-linked
Agammaglobulinemia (Bruton's Disease),
-
Selective IgA Deficiency,
-Severe Combined Immune Deficiency (boy-in-the-bubble disease).
Some disorders are be quite common, occurring in as many as 1 in 500 to 1 in 1000 individuals,
such as Selective IgA Deficiency .
whereas
Others, such as
Severe Combined Immune Deficiency, may be quite rare
as one individual per million.
IVIG have different indications in which they are used including your condition as PIDD .
your concerns are right since you are worried about your immunologist which moved away but you should trust your current physician who as you mention your hem/onc doc .
the most important aspect is that
Untreated primary immunodeficiencies may be characterized by frequent life-threatening infections and debilitating illnesses so do keep in tough with treating physician and if they will see some need for refferal then in such condition they do refer.
Hope this may help you. Let me know if anything not clear.
Thanks.